Low LH, FSH, Free Test and Test 32 Year Old Male

I can see what your saying by grasping for straws to a point, trust me I am feeling it. The main issue is my ferritin is in the 800's and they have no idea why. We are still waiting on the Hemachromatosis test if that comes back + that would explain a ton. Other than that all the other testing was looking for other things that might raise ferritin. If you have any ideas let me know. Thanks

I am getting life insurance because I have lost loved ones who didn't have much and saw how much that person's loss affected peoples lives who were close to them. I would like for my girlfriend of 5 years to be able to pay off the house if I were to pass away. I don't want her to have to move herself and the dogs and find a new place all while dealing with the death of someone she loves.

Hope this helps, thanks.
 
Hereditary (genetic) hemochromatosis (HHC) an inherited disorder of abnormal iron metabolism. Individuals with hereditary hemochromatosis absorb too much dietary iron.
Invalid Link Removed

Please forgive my cynicism about drs, but I was recently diagnosed with lyme disease after decades of drs doing nothing but guessing, Much of what they did hurt me, Not to mention the fact that drs charge you whether they are right or wrong. In addition to this, I am in danger of losing the condo I have already paid off.
 
I am so sorry to hear about your situation. Trust me I am not defending my Doc or any other Doctor that I have worked with. I am the one that seems to be educating them from what I have learned from people on line. I can understand where your coming from and once again sorry about your situation. Hopefully things will get better for you, at least you know what has been wrong all this time, but it should not have taken years to figure out.

I would agree 100% with the hemachromatosis diagnosis except my transferrin and total iron are great??
 
thanks its ok Im on the way to getting better which is all that matters, I just maintain a healthy skepticism about drs, things should be different.
 
Bryce720 said:
I am so sorry to hear about your situation. Trust me I am not defending my Doc or any other Doctor that I have worked with. I am the one that seems to be educating them from what I have learned from people on line. I can understand where your coming from and once again sorry about your situation. Hopefully things will get better for you, at least you know what has been wrong all this time, but it should not have taken years to figure out.

I would agree 100% with the hemachromatosis diagnosis except my transferrin and total iron are great??
Click to expand...

Sorry to come so late with this idea.

How many times have you tested Ferritin, twice, right??

Ferritin, Serum- 868 (22-322)
Ferritin Serum 828 (22-322)

Everything else, (tests around iron management), is always close to perfect, right,... right.

It would not hurt to go to another laboratory and have it tested again.

Make sure it is another laboratory all together, not a different drawing station.

Ask doctor, he can arrange for that to be done in "reference laboratory".

============================================

Where Lab Tests Are Performed

Invalid Link Removed

...
..

...
 
Well I got the results back for the Hemachromatosis testing, please see below.

Method:
A PCR-based assay was utilized to test for the following 3 mutations in the HFE gene. C282Y, H63D and S65C. Because of the minimal effect on iron metabolism associated with the S65C mutation, it is only report when it is found with the C282Y mutation.

Results:
C282Y - Not Detected
H63D - Heterozygous. One Copy of the H63D mutation identified

Interpretation:

These results suggest a low risk for either a diagnosis of the hereditary Hemachromatosis (HH) or a predisposition for (HH)

The diagnosis of (HH) can not be excluded since approx. 2 to 4% of patients with (HH) in a North American Caucasian population have this genotype. However this genotype is also found in approx 20 to 30% of clinically normal individuals. For other ethnic or racial groups, the % of HH patients with this genotype may differ. Additionally, these results do not rule out the possibility of the disease causing mutations in other regions of the HFE genes. These results, therefore, need to be interpreted in the context of the clinical presentation and the results of the other laboratory.

Sorry for the super long story,just want everyone to have the whole story. I am at a loss where do we go from here, what other tests do we run. Any help, please? Thanks>
 
As JanSz suggested, you may want to re-do ferritin test with a different lab. The first one could have messed it up.
 
I am doing another ferritin draw today. Will post results tomorrow. Keep your fingers crossed, thanks guys for all the help.
 
I just got back from the hospital and picked up my latest ferritin results. 1st draw ferritin was 868, 3 days later 828. I have been trying to put together all the pieces I was cutting at this time and cut calories to far I was actually losing muscle and working out super hard trying to get rid of some psuedo gyno I have had since about 15. Now I have read not eating enough aka malnutrition can cause high ferritin so since the second draw I have been bulking eating a ton of clean and some not so clean calories.

I just got my new results tonight after about 7 days of eating a ton and my ferritin has dropped to 504.7. Do you think this could be from actually eating enough calories, I really think I might be on to something.
 
its certainly a start, congratulations on that but remember per jansz's post you want to be below 10.

most importantly, do you feel better?
 
Sorry, not quite sure what you mean by below 10, the scale is from 22-322. From the research I have done I should be out of the triple digits but 10 would be too low. I would not say I feel any better I have a ton of other crap going on. Low free test, RT3 problems, High SHBG and low estrogen.

Thanks for the reply.
 
its all related one leads to another. jans initial post was from a firkm that said i should be below 10. good luck, you are close to the resolution trust me.
 
Bryce720 said:
I just got back from the hospital and picked up my latest ferritin results. 1st draw ferritin was 868, 3 days later 828. I have been trying to put together all the pieces I was cutting at this time and cut calories to far I was actually losing muscle and working out super hard trying to get rid of some psuedo gyno I have had since about 15. Now I have read not eating enough aka malnutrition can cause high ferritin so since the second draw I have been bulking eating a ton of clean and some not so clean calories.

I just got my new results tonight after about 7 days of eating a ton and my ferritin has dropped to 504.7. Do you think this could be from actually eating enough calories, I really think I might be on to something.
Click to expand...

You may be into something, specially that it works.
You may want to make sure that not only your diet is good (but, I guess, no beef and no liver). Good fats are usually important.

digestive enzymes, (WobenzymN)
Country Life Betaine Hydrochloride with Pepsin -- 600 mg - 250 Tablets
------------------------------------------------

Do you happen to have some old tests that would show your Ferritin at normal level??????

Have you eaten some supplements that are hard on liver?

----------------------------------------------------
keep this in mind:
Because inflammation in the body can cause high ferritin levels, a test result that is slightly high does not always mean a buildup of iron
-------------------------------------------------
Invalid Link Removed

Very high ferritin levels (greater than 1,000 ng/mL) can mean a large buildup of iron in the body (hemochromatosis). One form of this condition is passed on in families (genetic hemochromatosis). Some diseases, including alcoholism, thalassemia, and some types of anemia that cause red blood cells to be destroyed, can also cause hemochromatosis. Also, if you have many blood transfusions, this can sometimes cause the body to store too much iron (acquired hemochromatosis).
High ferritin levels may also be caused by liver disease (cirrhosis or hepatitis), Hodgkin's disease, leukemia, infection, inflammatory conditions (such as arthritis or lupus), or a diet that is too high in iron.

(genetic hemochromatosis--- I think this one is eliminated by tests you done so far

alcoholism,
thalassemia,
if you have many blood transfusions
liver disease (cirrhosis or hepatitis),
Hodgkin's disease,
leukemia,
infection,
inflammatory conditions (such as arthritis or lupus)
diet that is too high in iron
==========================================================
 
Bryce720

We are going to keep searching for reasons for your high Ferritin.

But in the same time you have already known two problems that if solved may help.

I suggest that you check

as many as possible inflammation markers

your adrenals
adrenals have to be prepared/checked first because

you have very high rT3 and you are going to eat straight Cytomel-T3 (up to about 100mcg/day)
without any T4.
Repeat, no T4
-----
You have very high SHBG
you will do very frequent Testosterone shots, average weekly dose about 300mg/week also HCG will be included

High testosterone increases iron, you will have to monitor Hemoglobin and hematocrit often.

-----

Hihgh SHBG (most often) indicate metabolic problems.
Easiest to fix is insulin/glucose

lets start investigation there
=====================================

If you are game for this approach, let me know, I will flesh out this program

............................................................
 
I am assuming when you say check the adrenals your referring to the 4X Saliva cortisol testing. What is the most cost effective way to get this done and where. Should i do this testing on gym days or non gym days. Thanks so much.
 
Sorry I didn't respond to all that was in your post. We've excluded many of the reasons for high ferritin.
Hemochromatosis-No
hep A, B or C - No
Lupus- No
Arthritis- No
Liver Panel Looked Fine
Alcoholism- No
Leukemia- No
No Blood Transfusions

I would say about a 4 weeks before I took the ferritin test I took

HGH UP

Amount Per Serving % Daily Value

Somatotrophic-Myonucleic Growth Factor:

Cholorophytum Borivilanium (75% extract), L-Carnitine L-Tartrate, Green Tea (98% Polyphenol 50% EGCG), Mucuna Pruriens (standarized to 75% L-Dopa), Magnesium (as Magnesium Carbonate), B-Complex, Bioperine (95-98% Piperine), Huperzine-A (Huperzia Serrata 5% Extract), Selenium

Testopro

Amount Per Serving % Daily Value
Testofen (Fenugreek Extract 50% Fenuside) 300mg **

TestoPRO Complex (propietary blend):

Quercetin 95%, Divanil (95% 3,4-Divanillyltetrahydrofuran from Urtica Dioica), Indole-3-Carbinol (I3C), Bioperine (95-98% Piperine)
600mg

Sustain Alpha W/liqua vade

Amount Per Serving % Daily Value
Trans-Reversatrol (99% pure resveratol-emodin free) 100mg **
7,8-Benzoflavone (99% pure 7,8-benzoflavone) 72mg **



* Percent Daily Values are based on a 2000 calorie diet.
** Percent Daily Values not established.

OTHER INGREDIENTS: Liqua-Vade Delivery Technology [Distilled water, sorbitan monolaurate, ethoxylated sorbitan trioleate, ethoxylated mono and di-glycerides, medium chain triglycerides, sesame oil, grape spirits, phospholipid complex (phosphatidylcholine, lysophosphatidylcholine), glyceryl triacetate, glycerol monocaprylocaprate, hydroxypropyl methylcellulose], sweet cherry powder, malt syrup, malic acid, trisodium citrate, natural cherry flavor, sucralose, simethicone, potassium sorbate, sodium benzoate, FD&C red 40, citric acid, sucrose.

Do you see any potential problems with any of these. Thanks
 
Bryce720 said:
I am assuming when you say check the adrenals your referring to the 4X Saliva cortisol testing. What is the most cost effective way to get this done and where. Should i do this testing on gym days or non gym days. Thanks so much.
Click to expand...

Speaking of getting adrenals and thyroid to be able to accept supplements,
I see this as required preparation:


#1 check status of micronutrients and do required corrections
#2 check your status of cortisol two ways, 4xsaliva and 24-hr urine

in a way, 24-hr urine testing is more important than 4xsaliva
If you are not producing excessive amounts of cortisol on 24hr basis,
then
you are able to support any hourly deficiencies with Cortef=HC(hydrocortisone) or sometimes Medrol.

if you are producing too much cortisol, we get back to that if reqd

You also have to check electrolytes and renin, aldosterone and blood pressure.
Any deficiencies there have to be corrected first, before you can use any thyroid hormones.
Those corrections, if required, may involve supplementing with salt, sometime potassium and Florinef.
-----------
required testing

blood
Comprehensive Metabolic Panel w/EGFR
DHEA Sulfate 402X
Aldosterone
Renin Activity, Plasma
ACTH, Plasma
Cortisol Binding Globulin (Transcortin) (37371X)
8AM/4PM/10PM---Cortisol, Free and Total, LC/MS/MS (37077X)
----------

Spectracel-5000(all available micronutrients and lipids)
spectracell.com

Fatty Acid Analysis (Genova Diagnostics)
saliva 4x (Genova or other place)

24hr-urine RheinLabs
------------------------------------------------------------------

You will need honest testosterone supplementation,
I suggest that you drop all questionable boosters and hyped supplementation that you may wonder about their quality, actual ingredients or what they may do to your Ferritin or anything else.

High SHBG most likely mean that you have major inbalances.
To start looking, we have to start from glucose/insulin.

Spectracell and fatty acids (above) should also be helpful in this area.

.................

One more look on micro-nutrients is available via Hair Analysis.
It shows not only status of beneficial but also toxic elements.

I do my Hair Analysis at Genova Diagnostics.

---------------

If you plan doing/arranging for any of the analysis above, you may, except for the blood tests.

I hate to have my veins punched thru, unless really necessary, so I feel for others.

Wait until the whole game plan is in place.

-------------
 
Thanks so much for all the above info, I am just a little confused?? You do want me to get all of this testing done now or later??

"If you plan doing/arranging for any of the analysis above, you may, except for the blood tests."

Are you saying wait?? Let me know what you think our next step is and we will go from there. Thanks so much for all your help. Hopefully your having a good weekend.
 
Bryce720 said:
Thanks so much for all the above info, I am just a little confused?? You do want me to get all of this testing done now or later??

"If you plan doing/arranging for any of the analysis above, you may, except for the blood tests."

Are you saying wait?? Let me know what you think our next step is and we will go from there. Thanks so much for all your help. Hopefully your having a good weekend.
Click to expand...

Hey, this is a lots of tests.
Not only lots of work, lots of $$, but also you will have to look for doc who have accounts (or willing to take 10 min of his staff to open) at Genova Diagnostics, Spectracell and Rhein Labs.

GDX.net
Spectracell.com
RheinLabs.com

Invalid Link Removed

Invalid Link Removed

Invalid Link Removed


Lots of work.

I will be happy to help you with all this.
Lets summarize.

No, before that, throw away all suspect supplements,
better yet, make a list of all medicines, supplements everything that is not a conventional food, that you eat, post it here.
--------------------------------------------------------------------------
Tests:

Spectracell-5000(all available micronutrients and lipids)(done at Spectracell.com) script is not required but it cost more without it

Essential & Metabolic Fatty Acids Analysis (EMFA)(done at Genova Diagnostics)(GDX.net)
Hair Analysis (done at Genova Diagnostics)
Adrenocortex Stress Profile (saliva) (done at Genova Diagnostics)

24-hr urine test at RheinLabs (Invalid Link Removed) not sure if script reqired

blood test, at QuestDiagnostics, blood drawn at Quest
fasting min 9hrs, 12oz of water at 6AM, first draw 7:30AM

You may want to use my ICD-9 codes or have your own worked out by your doc. Let me know how what you decided.

This test cost about $3500
If you pay cash, I can figure out close approximation to this list for $1000 at

Invalid Link Removed
then, the testing will be done at LabCorp.

-------------------

1 --------- Comprehensive Metabolic Panel w/EGFR
2 --------- CBC w/ diff/PLT
3 --------- VAP TM Cholesterol Test (10270X)
4 --------- Selenium, Whole Blood (4875W)
5 --------- Copper, serum
6 --------- Zinc
7 --------- Magnesium, Serum (622X)
8 --------- C-Reactive Protein (CRP), Highly Sensitive, CSF - (17401X)
9 --------- Fibrinogen
10 --------- Homocysteine, cardio
11 --------- Lipoprotein (A) Lp(A)
12 --------- Iron and Iron Binding Capacity (7573X) - (356N)
13 --------- Iron, Total (571X) - (24984P)
14 --------- Ferritin (457X) - (22764P)
15 --------- Transferrin (891X) - (30346P)
16 --------- Folate, RBC & Hematocrit - (1768N)
17 --------- Hemoglobin A1c (496X) - (45484P)
18 --------- Hemoglobin, Plasma (514X) - (7211P)
19 --------- VITAMIN A, E, B3, B12
20 --------- Vitamin D, 25-Hydroxy, LC/MS/MS - (17306X)
21 --------- T3, Total (859X)
22 --------- T4, Total (Thyroxine)
23 --------- T3, Free
24 --------- T4,Free
25 --------- T3, Reverse (967X)
26 --------- Ultrasensitive TSH
27 --------- Thyroid Peroxidase and Thyroglobulin Antibodies (7260X)
28 --------- Insulin, serum
29 --------- IGF Binding protein-3
30 --------- IGF-1
31 --------- DHEA Sulfate 402X
32 --------- Aldosterone
33 --------- Renin Activity, Plasma
34 --------- ACTH, Plasma
35 --------- Cortisol Binding Globulin (Transcortin) (37371X)
36 --------- 8AM/4PM/10PM---Cortisol, Free and Total, LC/MS/MS (37077X)
37 --------- Prolactin - (746X)
38 --------- Progesterone, LC/MS/MS 17183X
39 --------- Pregnenolone, LC/MS/MS (31493X) 28373P
40 --------- Androstenedione, LC/MS/MS - (17182X)
41 --------- Estradiol [4021X](13- 54 pg/mL)
42 --------- Estrogens, Fractionated, LC/MS/MS (36742X)
43 --------- Testosterone, Free, Bio/Total (LC/MS/MS) Code: 14966X
44 --------- Dihydrotestosterone
45 --------- 3a-Androstanediol Glucuronide
46 --------- Ceruloplasmin (326X)
47 --------- Coenzyme Q10 (198268)
48 ---------
--------------------------------------------------------------------------------------------------
244.9 ----- 257.2 ----- 780.79
250.00 ----- 272.4 ----- 788.41
250.01 ----- 601.9 ----- 253.3
255.4 ----- 780.4 ----- 255.8
783.9 -----
--------------------------------------------------------------------------------------------------

It takes them close to 3 weeks to do this testing.
If no results at end of week #3, you (patient) may call.
To talk to Quest 1-800-631-1390 ,, press zero few times to get to physical person

/////////////////////////////////
////////////
 
Thanks so much for all you time Jansz, you've been a great help. I did a meet and greet with an osteopath who seems very knowledgeable yet open to input. I think I'm going to make an appointment with him. He does utilize the Spectrecell-5000 testing, so I can get this done. I will have him run this, what else should I have him run?? Thanks
 
Bryce720 said:
Thanks so much for all you time Jansz, you've been a great help. I did a meet and greet with an osteopath who seems very knowledgeable yet open to input. I think I'm going to make an appointment with him. He does utilize the Spectrecell-5000 testing, so I can get this done. I will have him run this, what else should I have him run?? Thanks
Click to expand...

Read the post above, that should do it.

Most of osteopaths are rather open minded, good luck.

As him for "lymphatic massage" see if you like it.

After you know him more, if you still have good experience with him,
post at least his zip code.

Good doctors are always in short supply.

...\
Make sure to post your test reports after you get them.
Lots of typing, scan each page, publish as pictures, post link.


Good luck.
...
 
Thanks so much for the response. Like I said above, he does utilize spectrecel, I don't believe he utilizes genova?? I will finds out though. If not and I have to do most of the testing through labcorp, going through the list above would I not run the stuff I just ran. Such as vitamin D, B12, CBC with differential and so on or do I just rerun it all?? If he does not have an account with genova should I try to get him to set one up, or is it that important?? I think I can know out most of these tests but all might be a little daunting. Thanks
 
Bryce720 said:
Thanks so much for the response. Like I said above, he does utilize spectrecel, I don't believe he utilizes genova?? I will finds out though. If not and I have to do most of the testing through labcorp, going through the list above would I not run the stuff I just ran. Such as vitamin D, B12, CBC with differential and so on or do I just rerun it all?? If he does not have an account with genova should I try to get him to set one up, or is it that important?? I think I can know out most of these tests but all might be a little daunting. Thanks
Click to expand...

Do not forget

RheinLabs.com

What is the name of laboratory that you use for blood testing?

Yes, there is no need to repeat recently done vitamin tests.
Actually Spectracell-5000 have all that you may want in the way of vitamins.

-----------------------------------

...
 
I think it is going to be tuff to talk the doctor into signing up for all these different labs. He said he uses Spectrecel and Lab Corp, I am not sure who does the urine testing but I know he utilizes that as well. This being the case I will have him run the Spectrecel-5000 test, beyond that what lapcorp tests should we run. I don't want to overwhelm him in the beginning. Sorry to be talking in circle, but I have an appointment on 25th, and I want to go in with a clear plan. Thanks
 
Bryce720 said:
I think it is going to be tuff to talk the doctor into signing up for all these different labs. He said he uses Spectrecel and Lab Corp, I am not sure who does the urine testing but I know he utilizes that as well. This being the case I will have him run the Spectrecel-5000 test, beyond that what lapcorp tests should we run. I don't want to overwhelm him in the beginning. Sorry to be talking in circle, but I have an appointment on 25th, and I want to go in with a clear plan. Thanks
Click to expand...

Do not worry about circles, life is newer straight.
Lets work on a plan.

Ok, you have my list of different tests on above post #69.

Below is a blood test list that is designed for use at LabCorp.

You pick what you want to test.
------------------------------------------------------------------------
From pov of overwhelming doctor, I think that way:

If you give him my list and start asking for advice, he have to work overtime in trying to justify or discard someone else's idea.
Additionally it will take him and his nurse time to convert my list into his forms.

you are asking him to spend 30-45 minutes plus his nurses time.

I do not see this as good option, may spoil his day.

With my doc,
I send e-mail with a list of what I want (just to give heads up, he newer looks at it).
Then, when I see him, I hand him my list.
Office worker takes stationary with doctor's firm name, and other data on top.
She xerox my list over the stationary.
doc signs it, I am gone.

All this takes less than a minute, I do not even have a time to drink his coffe.

I did this already number of times, so now, anytime I want testing, it is routine.

I do not need to make separate appointment to get script.

I send e-mail to office worker say 10AM.
11AM I call her, tell her my story, ask her when it is convenient to show up.
When I am in office (3PM), I give her my list, she xerox it, enters doctors room, comes back with signed script, hands it to me.
I wait till current patient leaves or for doc to show up, shake his hand and I am gone.

...================================================

1 --------- Comprehensive Metabolic Panel w/EGFR
2 --------- CBC w/ diff/PLT
3 --------- VAP TM Cholesterol Test
4 --------- Selenium, Whole Blood
5 --------- Copper, serum
6 --------- Zinc
7 --------- Magnesium, Serum
8 --------- C-Reactive Protein (CRP), Highly Sensitive, CSF
9 --------- Fibrinogen
10 --------- Homocysteine, cardio
11 --------- Lipoprotein (A) Lp(A)
12 --------- Iron and Iron Binding Capacity
13 --------- Iron, Total
14 --------- Ferritin
15 --------- Transferrin
16 --------- Folate, RBC & Hematocrit
17 --------- Hemoglobin A1c
18 --------- Hemoglobin, Plasma
19 --------- VITAMIN A, E, B3, B12
20 --------- Vitamin D, 25-Hydroxy
21 --------- T3, Total
22 --------- T4, Total
23 --------- T3, Free
24 --------- T4,Free
25 --------- T3, Reverse
26 --------- Ultrasensitive TSH
27 --------- Thyroid Peroxidase and Thyroglobulin Antibodies
28 --------- Insulin, serum
29 --------- IGF Binding protein-3
30 --------- IGF-1
31 --------- DHEA Sulfate
32 --------- Aldosterone
33 --------- Renin Activity, Plasma
34 --------- ACTH, Plasma
35 --------- Cortisol Binding Globulin (Transcortin)
36 --------- 8AM/4PM/10PM---Cortisol, Free and Total
37 --------- Prolactin
38 --------- Progesterone
39 --------- Pregnenolone
40 --------- Androstenedione
41 --------- Estradiol, sensitive 140244
42 --------- Estrone, Serum
43 --------- Total Testosterone
44 --------- SHBG
45 --------- Albumin
46 --------- Dihydrotestosterone
47 --------- 3a-Androstanediol Glucuronide
48 --------- Ceruloplasmin
49 --------- Coenzyme Q10
--------------------------------------------------------------------------------------------------
244.9 ----- 257.2 ----- 780.79
250.00 ----- 272.4 ----- 788.41
250.01 ----- 601.9 ----- 253.3
255.4 ----- 780.4 ----- 255.8
783.9 -----
--------------------------------------------------------------------------------------------------




============
============
 
Well I just got back from my Osteopathic appointment, very nice doctor. Total appointment time was about 45 minutes, nice. We went over all the blood work and what he thinks about it. I think it is going to be tuff to get him to run all the test above, I had to talk him into the Spectracell-5000 test for goodness sakes. But he does seem open to treating me and seems at least semi-knowledgeable.

Based off of my blood work and symptoms he would like to treat the RT3 and and low testosterone. 1st he said my RT3 to T3 ratio puts me at hypothyroid and we need to treat that with T3 only aka cytomel 10mcg per day, 5 mcg morning and 5mcg midday. he gave me a ZRT laboratory Salavia test to do and send in. I believe I supposed to run 4x cortisol and DHEA, Correct?? Is there anything else I should have them check saliva wise??? He said regardless how the adrenals came back he would still start the T3 right away. He said I should feel different taking the T3 the 1st day if not the 1st couple of days??

Next he would like to treat my low testosterone. He prescribed me Testim (testosterone cream), Apply 5gm daily. He did say we could throw HCG in there if I would like. I then asked him if he would monitor Estrogen, he said he would. If it gets high he will put me on a AI.

I didn't fill any of the scripts he wrote as I don't want to jump into treatment blindly again. I will see my Hemotologist tomorrow, to go over the slew of test she ran, they all look good to me, so I'm not anticipating anything. I think I will have her run my ferritin again, keep your fingers crossed that it drops again. Is there any other tests I should have her run and or any questions?? Thanks so much for your time and have a good night.
 
uh oh, if I read your post correctly you are getting a saliva test for T3, a saliva test does not work for thyroid testing. That is because concentrations in blood are 100 or is it 1000 times higher than saliva. the slightest degree of bleeding from the gums will trow off the test. it does work for cortisol though.
 
Bryce720 said:
Well I just got back from my Osteopathic appointment, very nice doctor. Total appointment time was about 45 minutes, nice. We went over all the blood work and what he thinks about it. I think it is going to be tuff to get him to run all the test above, I had to talk him into the Spectracell-5000 test for goodness sakes. But he does seem open to treating me and seems at least semi-knowledgeable.

Based off of my blood work and symptoms he would like to treat the RT3 and and low testosterone. 1st he said my RT3 to T3 ratio puts me at hypothyroid and we need to treat that with T3 only aka cytomel 10mcg per day, 5 mcg morning and 5mcg midday. he gave me a ZRT laboratory Salavia test to do and send in. I believe I supposed to run 4x cortisol and DHEA, Correct?? Is there anything else I should have them check saliva wise??? He said regardless how the adrenals came back he would still start the T3 right away. He said I should feel different taking the T3 the 1st day if not the 1st couple of days??

Next he would like to treat my low testosterone. He prescribed me Testim (testosterone cream), Apply 5gm daily. He did say we could throw HCG in there if I would like. I then asked him if he would monitor Estrogen, he said he would. If it gets high he will put me on a AI.

I didn't fill any of the scripts he wrote as I don't want to jump into treatment blindly again. I will see my Hemotologist tomorrow, to go over the slew of test she ran, they all look good to me, so I'm not anticipating anything. I think I will have her run my ferritin again, keep your fingers crossed that it drops again. Is there any other tests I should have her run and or any questions?? Thanks so much for your time and have a good night.
Click to expand...

Ok, so you will have
Spectracell-5000(make sure that it is all micronutrients and lipids)(they have lesser choices)
and
from ZRT saliva & DHEA

Spectracell results will tell you what you need to supplement
we are going to say that that is sufficient to support adrenals and thyroid in a way of supplements (buy you still may need scripted medicines).

ZRT will tell you where you stand on cortisol.

You may be good you may be low, we will deal with that latter, when you have results.

But now, ask your doc for a script for

Cortef or HC(hydrocortisone)
40mg/day

You will take that (Cortef or HC) pre-emptively, to play safe.
10mg/wakeup +10mg/4hr latter + 10mg/4hr latter +10mg/4hr latter
we may change proportions latter

A week or better 2 weeks latter you are ready to take Cytomel-T3

10mcg/day Cytomel is waste of time

Your plan is to get to 75mcg/day (within 6-8 weeks) then go for 100mcg/day

Ask for script for 100mcg/day

after 2-3 months on 100mcg/day get a blood test for thyroid hormones.
We will talk what tests and discuss results.

Make sure that you do not use anything else except Cytome-T3 or equivalent generic.
Definitely no T4

=============================================

You have very high SHBG=55.7

again go back to my post #26

Forget about any transdermal-T

You MUST have T & HCG
as I written there, re-read the whole part of that post

Keep in mind that,
presently you have low E2
as long as your SHBG is high the E2 also have to be high.

You want E2~(0.6-0.75)SHBG
===================

Estradoil- 9.5 (7.6-42.6)
Reverse T3 380 (90-350)
Ferritin, Serum- 868 (22-322)
Free T3- 3.0 (2.0-4.4)
SHBG- 55.7 (14.5-48.4)
..

It would help to have better view of your cortisol status based on 24 hr averages.
Try to get (first choice)(you pay cash, (about $225), doc just calls with a script, not much work for doc)
rheinlabs.com
24hr urine RhenLabs test
or
at least

24hr Free-Cortisol
from Quest or any other place

//////
 
I agree with you, I was just posting what he thought the best approach was. I really don't think I can convince him to do this. Doctors seem to have a hell of a time taking advice from anyone, this is just in my experience thus far. I really don't know how to proceed, it is going to be impossible to find a doc and say this is what is wrong with me and this is how you need to treat it. Thanks so much for all you help, I will have to think this through and make a plan.
 
Bryce720 said:
I agree with you, I was just posting what he thought the best approach was. I really don't think I can convince him to do this. Doctors seem to have a hell of a time taking advice from anyone, this is just in my experience thus far. I really don't know how to proceed, it is going to be impossible to find a doc and say this is what is wrong with me and this is how you need to treat it. Thanks so much for all you help, I will have to think this through and make a plan.
Click to expand...

your zip code is??


...........
 
Thanks so much for all the help Jansz. I just got back from my appointment with the Hemotologist and we went over all the blood work, it was a really good appointment. She said she thought everything looked great, she was glad to see the the ferritin had dropped some even though it is too high still. She thinks it all has to do with the mutation of H63D gene, she said she has seen it on more than one occasion. She said she still believes it could still be hemachromatosis because of this mutation and the ferritin issues. She was not just saying this because she does not know what else it could be, but because she has seen it. I did a ferritin draw tonight so keep your fingers crossed. Based upon the results of this test she said she would donate some blood and she wants to see me in 3 months to draw ferritin and transferrin and iron. So this was some good news. Let me know what you all think. Thanks again.
 
wow, i'm in a similar but different boat myself, ironically at 32 as well. Recently diagnosed with Low Test(as well as all out of wack liver #s) when i went in to my reg doc for temper issues i was having. Then to a urologist, who ran another set of tests (FSH, Prolactin, Test(free/ttl/%), and then prescribed me Androgel. I started researching TRT&HRT, and realized that the urologist never even asked me 95% of what he should have, especially if i planned on more children. I'm pissed that i started researching AFTER having filled my script(massive copay), but since have wised up. Never began the Androgel and just got more bloodwork from a really good endocrinologist this past week, results this coming week. He ran a far more in depth panel on test, thyroid, LH and more, he said in his opinion its not a test issue but something else, doesn't leave me anymore comforted but i'm happy in that he didnt' just jump to the symptom and is gonna try to find the root cause which is all i want. Never did any aas/ph before in my life, but did have some rather extensive recreational drug use from 14-25, as well as smoked from 14-21.

i'm subb'd in here, hope it all works out, i'm tuned in and reading it all
 
spaz I would start a new thread so you can get complete attention to it. With that being said, you should also test estradiol. High estrogens will make you miserable and could cause temper issues.
 
good idea spinn, i don't wanna threadjack here. When i get some time i will put it all together, it's been a $hitty mindfuk so far i can tell you. gonna make a thread now...
 
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