Looking for recommendation on fibromyalgia pain!

gabriellost

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What do you recommend for fibromyaligia? Is it a virus which may cause an auto-immune response? I have a 24 yr old daughter who suffers daily from fibromyalgia pain, please advice.
Thanks!
 
Trauma1

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What do you recommend for fibromyaligia? Is it a virus which may cause an auto-immune response? I have a 24 yr old daughter who suffers daily from fibromyalgia pain, please advice.
Thanks!
It was thought initially that it was directly an auto-immune response/issue, however it's likely that a number of factors contribute to the development of fibromyalgia. Doctors have not been able to pinpoint one direct cause of fibromyalgia. Other theories as to the cause of fibromyalgia include:

Sleep disturbances. Some researchers theorize that disturbed sleep patterns may be a cause rather than just a symptom of fibromyalgia.

Injury. An injury or trauma, particularly in the upper spinal region, may trigger the development of fibromyalgia in some people. An injury may affect your central nervous system, which may trigger fibromyalgia.

Infection. Some researchers believe that a viral or bacterial infection may trigger fibromyalgia.

Abnormalities of the autonomic (sympathetic) nervous system. Part of your autonomic nervous system — the sympathetic, or involuntary, system — controls bodily functions that you don't consciously control, such as heart rate, blood vessel contraction, sweating, salivary flow and intestinal movements. It’s thought that sympathetic nervous system dysfunction occurs in people with fibromyalgia, particularly at night, which leads to fatigue, stiffness, dizziness and other signs and symptoms associated with the condition.

Changes in muscle metabolism. For example, deconditioning and decreased blood flow to muscles may contribute to decreased strength and fatigue. Differences in metabolism and abnormalities in the hormonal substance that influences the activity of nerves may play a role.

Psychological stress and hormonal changes also may be possible causes

Treatment options include the following:

Medications
Medications can help reduce the pain of fibromyalgia and improve sleep. Common choices include:

Analgesics. Acetaminophen (Tylenol, others) may ease the pain and stiffness caused by fibromyalgia. However, its effectiveness varies. Tramadol (Ultram) is a prescription pain reliever that may be taken with or without acetaminophen. Your doctor may recommend nonsteroidal anti-inflammatory drugs (NSAIDs) — such as aspirin, ibuprofen (Advil, Motrin, others) or naproxen sodium (Anaprox, Aleve) — in conjunction with other medications. NSAIDs haven't proved to be effective in managing the pain in fibromyalgia when taken by themselves.

Antidepressants. Medications such as amitriptyline, nortriptyline (Pamelor) or doxepin (Sinequan) to help promote sleep. Fluoxetine (Prozac) in combination with amitriptyline has also been found effective. Sertraline (Zoloft) and paroxetine (Paxil) may help if you're experiencing depression.

Some evidence exists for a newer class of antidepressants known as serotonin and norepinephrine reuptake inhibitors or dual uptake inhibitors, which regulate two brain chemicals that may transmit pain signals. Studies have found that duloxetine (Cymbalta) may help control pain better than placebo in people with fibromyalgia. Small trials of venlafaxine (Effexor) suggest the same, though more study is needed to confirm these findings.

Muscle relaxants. Taking the medication cyclobenzaprine (Flexeril) at bedtime may help treat muscle pain and spasms. Muscle relaxants are generally limited to short-term use.

Pregabalin (Lyrica). Pregabalin may reduce pain and improve function in people with fibromyalgia. Pregabalin, an anti-seizure medication that's also used to treat some types of pain, is the first drug approved by the Food and Drug Administration to treat fibromyalgia. Studies show pregabalin reduced signs and symptoms of fibromyalgia in some people. In one study, about half of the participants taking the highest doses of the drug reported at least a 30 percent improvement. Side effects of pregabalin include dizziness, sleepiness, difficulty concentrating, blurred vision, weight gain, dry mouth, and swelling in the hands and feet.
Prescription sleeping pills, such as zolpidem (Ambien), may provide short-term benefits for some people with fibromyalgia, but doctors usually advise against long-term use of these drugs. These medications tend to work for only a short time, after which your body becomes resistant to their effects. Ultimately, using sleeping pills tends to create even more sleeping problems in many people.

Benzodiazepines may help relax muscles and promote sleep, but doctors often avoid these drugs in treating fibromyalgia. Benzodiazepines can become habit-forming, and they haven't been shown to provide long-term benefits.

Doctors don't usually recommend narcotics for treating fibromyalgia because of the potential for dependence and addiction. Corticosteroids, such as prednisone, haven't been shown to be effective in treating fibromyalgia.
 

Bobaslaw

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I am so sorry, I really feel for anyone with this condition. My wife has been diagnosed with fibromyalgia and we live with it for over 10 years.
I am not sure this is the site that will give you the most feedback on this disease. I would llook at "chronic pain" related websites and those specifically dedicated to fibromyalgia.
Unfortunatgely there is no known definitive cause for fibromyalgia. You will only hear about theories and speculations to its causes and mechanisms.
My wife is always in pain throughout all her body, pain sensative to the touch, etc. Nothing in our long battle has been a "cure". Only limited pain relief from prescription drugs/analgesics and some improved physical condition with some kind of physical execise. Your doctor will usually end up trying certain drugs and sending you to a pain clinic and support groups to learn to manage/cope with this disease.
Doctor (Pain Specialist)prescribed Lyrica recently which we discontinued due to unmanageble side effects... Lyrica may work for some ans is touted a rather new drug with hope for fibromyalgia. Another procedure/treatment was lidocain infusion where your body is fed a solution of lidocain intravenously (IV). This did not work for us either. It has worked for a few as I've researched this for other fibro patients success. She is already on antidepressants which do not help (Anti Depressants are also on the list of possible drugs giving releif to fibro.. She has been on every one that is available right now. Cymbalta being the worst one. Avoid Cymbalta if you ever get put on it. There is a big controversy on this drug right now and I would no doubt that it will get pulled if you read some horror stories on it. (Google Cymbalta Side Effects)
Please look into online fibromyalgia resources and see a pain specialist. Online is the best place to learn fully about it.
Sorry for the diagnosis and good luck to you both. I wish I had better news to share about it myself.

Take Care,
Bob
 
Trauma1

Trauma1

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I am so sorry, I really feel for anyone with this condition. My wife has been diagnosed with fibromyalgia and we live with it for over 10 years.
I am not sure this is the site that will give you the most feedback on this disease. I would llook at "chronic pain" related websites and those specifically dedicated to fibromyalgia.
Unfortunatgely there is no known definitive cause for fibromyalgia. You will only hear about theories and speculations to its causes and mechanisms.
My wife is always in pain throughout all her body, pain sensative to the touch, etc. Nothing in our long battle has been a "cure". Only limited pain relief from prescription drugs/analgesics and some improved physical condition with some kind of physical execise. Your doctor will usually end up trying certain drugs and sending you to a pain clinic and support groups to learn to manage/cope with this disease.
Doctor (Pain Specialist)prescribed Lyrica recently which we discontinued due to unmanageble side effects... Lyrica may work for some ans is touted a rather new drug with hope for fibromyalgia. Another procedure/treatment was lidocain infusion where your body is fed a solution of lidocain intravenously (IV). This did not work for us either. It has worked for a few as I've researched this for other fibro patients success.
Please look into online fibromyalgia resources and see a pain specialist. Online is the best place to learn fully about it.
Sorry for the diagnosis and good luck to you both. I wish I had better news to share about it myself.

Take Care,
Bob
It's a very difficult condition to continously manage effectively overall. I've seen a few success stories with lyrica myself, but as with anything in medicine what works for one may not with others. I really feel for you all that are affected with this condition. There are some new treatment methods that are being introduced into practice which may offer some new hope in overall treatment plans.
 

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