- 04-20-2007, 07:23 AM
Well I have been posting and asking qeustions all over the place. I replied to a post by "Hunter" and he suggested I start a log. I which I had done this sooner. Not only will it help me to write things down, but I can ask qeustions, get answers and input and it will all be in one place. So this first one will be long as I have been dealing with this for six months. Thank you in advance for everyone who reads this. Also you all may get a little humor out of this. My actually name is Mark. SufferingED is an acronym for Suffering Erecytile Dysfunction. I figured if I can not at least laugh at my situation then I would go crazy. Wife puts a smile on my face sometimes by joking about as well. Well here it goes:
I am 37 years old and have been happiyl married for 9 years come May. We have three children from 5yrs old down to 2. Yes we are very busy. I am an avid runner. I run two marathons a year. When I am not running I enjoy lifting wieghts. I use to be into bodybuiling so I have a pretty large frame for running marathons.
Well last year I felt great. I had no problems. Life was good. I had lots of energy, and just really felt great about everything. I would wake up and think "damn it is great to be alive." Back then my wife would just look at me and tell me to meet her in the bedroom and I was ready to go. She receives Victoria Secret’s Catalog’s in the mail. Last year just looking at these would get me aroused. I had very strong morning erections, I remember going to the gym in the morning and thinking, "damn will this erection go away, I've got a run to get in." Now I wish I could say that.
I first started feeling drained and worn out around May of last year. I ran the Little Rock Marathon in March and felt great. I was seconds off of setting a new personal record. About a month later I was signed up to run another marathon. A week before I came down with a chest cold. I woke up the morning of the marathon and decided to run it anyways and not worry about time. I ran it, not to bad of time, but looked and felt like **** for the next couple of days. A week later I got fiexed, three kids was enough for us. This buy the way is what wife blames current situation on. As the year went on I started feeling more tired. I was not depressed but I seemed to lose the “zest” for life. Felt like I was just going trough the motions. Then in September I started having erectile dysfunction problems. I would just lose an erection in the middle of sex. Or I was unable to get one. This had happend to me before when we were tyring to get preganant with our second. I easly got over it though. All my wife had to do was stand naked in front of me say take me and I had no choice but to take her. This time though it felt different.It was not easily shrugged off.I started having more and more ED. I went to the Dr. and he had my testosterone tested. I started doing some research on Low T and found the signs, loss of sex drive, anxiety attacks, loss of morning erections, weight gain, loss of energy, all of which I had. The doctor called and said my T was normal at 411. I still was not feeling right, plus I had lost all interest in sex. A friend showed me a topless photo of Jenifer Anniston and I thought "oh thats nice." Last year I would have printed of the damn photo, gone home, and jacked off to it. So I went back and told him from what I read I need to be in the upper ¾ of 250 to 1100 which would put me at around 825. I told him how I was feeling and he put me on Testim, 5gms once a day. After the third week and into the 4th week I was really starting to feel good (best I’ve felt in last six months). My Ed problems started to go way, I felt great would get "woody" by just laying close to and touching wife, I still used Viagra though just in case. Then it went down hill again. I learned this was because my body had stopped producing T and all I was getting was what the Testim was giving me. I went back to the Doctor to check my T after 6 weeks and it was at 400. At this time I was still not getting any morning erections (I am now but not very strong, usually gone by the time I climb out of bed and get dressed). He did order some more labs, this time checking my Estrodial and Prolactin. My T was now up to 528 and my E2 was at 23. I did find out my Prolactin was high 15.9, according to labs indicating a range of 2 to 17. He then reffered me to Endo's office. They called and scheduled a vist for me first with their Urologist, and told me my appt would not be until May 8th with them.
So I went to the Uro. I did not tell him anything I had been reading. I wanted to see what he said first. I told him how I had been feeling and the problems I had been having. He said it sounded like I was suffering from Secondary Hypogonadism and the Endo's office should be able to take care of me. He increased my Testim to 10mg a day. He also said it sounded like I was someone who needed a higher level of Testosterone. he siad some people do fine at 500 and others need to be over 800. At least I now felt like I was headed in the right direction.
Well here it is four weeks later and two weeks before Endo visit. I am actually starting to feel worse. I still feel depressed, not bad, just still lacking that zest or go get it attitude I alwasy use to have.I still do not have much energy and have gained more weight. My anxiety has gotten really bad. I use to get it before sex, but then once I was able to get an erection, and we were into foreplay, the anxiety went away. Now it is worse than ever. I have it continously everyday even when not thinking of sex. It just gets worse when thinkg of having sex. I know it is performance anxiety but I also feel something else maybe causing it. My wife feels the same. My family has a history of depression so my wife thinks I may have depression now too.
I forgot to tell everyone that I did have a spike in sex drive for three months last year. I started taking Ogoplex. Man that stuff hsot the sex drive up. I was having rock hard erections, adn we were haing some great sex. I stopped taking it a month later was first ED episode. I tried taking it again to no effect.
So here I am. If I need to take depression or anxiety medicine then that could kill my aready low libido. Or maybe I just need to get my T up a little more and my prolactin down a bit. It has been six weeks since last labs and four weeks since Uro increased my Testim so my E2 could have risen also.
I know I need to relax, get my mind straight, and just wait util after Endo's visit ot attempt sex again.I tell my self this but then wake up in the middle of the night with an erection, think I need to do something with this, try to wake wife, get the rejection (she was tired, youngest was sick, she has test today). Now at work waiting for pissed off call from wife, telling the world about my broken penis and having anxiety attacks becasue since I tried something this mroning, she will want to try something tonight, it won't work and the cycle starts all over. Is it normal to look forward to your wife's monthly cycle! I think not. Hopefully I wll get this fixed soon.
- 04-20-2007, 07:41 AM
Well, i hope your next visit gets everything squared away. Hormones are a great place to start, but also need to look at psychological factors. Stress and whatnot.
And Also, when I seen your name before coming into the thread, I must admit... i thoght you did a play on words with your name (I figured before reading it was Ed)... so I thought you were another emo... like "CryingEmo"
AdamsThe Historic PES Legend
- 04-20-2007, 12:51 PM
good luck ill be following along
your whole experience has been exactly the same as fine. all started w an illness, no sex drive at all, cant wait till the ladies on her period so we dont have to worry lol
only difference id im bout 17 years younger
one thing if i were you would take injections, gels and patches can be iffy. doesnt always get obsorbed that great
one more thing, we both need to be really thankful for our significant others who doesnt mind putting up with this while we try to fix it. ive read many many logs where wives and girlfrends get so fed up that the relationships can end (even if there are children in the equation)
04-20-2007, 01:19 PM
04-20-2007, 02:48 PM
Fit4life--I actually thought about that. I am going to ask to switch in injections when I see the Endo. It does feel like I'm on a roller coaster ride. Maybe some days the gell is absorbing well and others it is not. We shall see.
Yes we are very lucky. My wife joked with me about it this morning reasuring me I just need to relax and then she added she could use the break with all the sex we've been having! Good Luck.
JanSz--I did down load your list and Dr. John's list. I am going to take those in to Endo and see what they say. If my Edno visit does not go well, I have a visit with the Urologist who siad I had Hypogonoadsim. If that one does not go well then I will see if my Doc will do a conference call with Dr. John. If all else fails then I will be planning a trip.
04-20-2007, 06:38 PM
Glad to see you starting your log! Remember we are all in the same boat, or have been there. So you are amongst those who understand your situation.
I also hope your Urologist knows about HRT. Mine didn't. He put me on the injections, and when I didn't respond as well as he thought I should have, he said he had no idea what to do and that he was too busy. He did however, agree to work the Dr. John in doing any bloodwork, but not prescribe me anything.
04-20-2007, 09:04 PM
04-21-2007, 09:11 AM
I have no choice but to do the VOV. I'm reaching my wits end, meaning I'll do about anything to get this resolved.
Good luck man.......and keep us posted.
04-21-2007, 09:44 AM
I was curious. Someone informed me I should get Dr to prescribe Paxil and take it with Cialis. This way I can be sure something would rise to the occasion and the Paxil would calm my nerves. I thought stuff like Paxil killed the sex drive? Something to ask doc about when I go I guess.
Those of you who are on the T-CYP and HCG shots. When do you take your shots? Morning or Night?
I had an MRI done 2 mos ago of my Pititory Gland. It came back normal. I was read if you had a small tumer on the Gland it could cause double vision, let alone messing up the hormones. I had lasics done over 5yrs ago. The last few years when I am tired I see double. I really have to concentrate to see normal. I have noticed it has gotten worse. My eye doctor said it is because they corrected one eye more than the other, so when I am tired my stronger eye is trying to take over. Any ideas? I did work 60hrs this week, so that could be why it is bad this week.
04-22-2007, 12:36 PM
I've never tried Paxil. Before going to see a Dr, I would avoid any advances from the wife for fear of failure. With the Cialis I have more confidence as I can repsond to it on some occasions, but other times nothing. Not sure what is up with that.
As for the vision thing, no idea man. I use reading glasses, but that is all. I've thought about surgery, but I can't afford it right now.
04-22-2007, 01:14 PM
04-23-2007, 09:03 AM
Well last night was a good night. Watching a movie with wife after the kids went to bed. She decided to roll over an work womenly charms on me. Took a little but my soldier finally rose, albiet slowly, to the occasion and was able to last the short duration. There is hope. I have a lot to ask Doc when I go. Heck they may even pay me to leave thier office after all the questions I am going to ask.
Those of you on TRT, when you are able to "perform" do you notice you are not able to last as long? Is this a side effect?
The over all weekend was not too bad. Still had some anxiety problems off and on, still having mild depression. I just can't seem to get excited or motiviated about anything.
Good luck to all.
JanSz--Military insurance kind of sucks from what I remember. Lots of unneccesary paperwork and hurtles to jump through to get things done. The only added benefit is it is free.
04-23-2007, 04:26 PM
04-23-2007, 05:06 PM
04-23-2007, 07:42 PM
04-23-2007, 07:57 PM
Remember all the fallout about Walter Reed Medicial Center?
04-23-2007, 08:02 PM
The good part is...I HAVE at least an interest again. Not great, but to some degree the libido up a bit.
04-24-2007, 07:40 AM
Good luck. We will get through this. We may lose our sanity in the process.
04-25-2007, 07:50 PM
04-26-2007, 11:59 AM
04-26-2007, 06:44 PM
I can't say you will be happy seeing a Endo I have seen 7 in the past 24 yrs. not one was any good. I feel when you upped the Testim your E2 went nuts this happened to me gels are bad for this and your DHT will jump way up. If I were you I would retest at your Dr. for E2 and DHT if high go to shots and start on some Arimidex .25mgs every 3 days in less then a week you will have some dam hard wood. High E2 and low T kill your sex life.
04-27-2007, 09:07 AM
I agree about the E2. I acutally feel about the same as when all this started. Tired, depressed, irritable, ect. I think bumping my Testim up last month probably pushed my E2 up which would really throw off the E to T ratio. My prolactin is also high, not bad but it is at 15.9. I'd like to see it lower too. But my last labs where over two months ago so there is no telling where I am at now. Only two weeks until bitter disappointment or a little hope.
04-27-2007, 09:11 AM
Another Question. If my I get my E2 down, my prolactin down and my T up, Could there still be other things that would cause me to feel the same even if the three above were where they should be. Would SHGB be messed up if the E2, Prolactin and T where were they should be? I tend to get confused with all this. I feel like I am going to med school.
04-27-2007, 01:00 PM
Here it's all in this link.
Male Hormone Modulation Therapy.. HGH replacement, Testosterone Replacement
And when I was on gels as time went on my joints and muscles hurt real bad Dr. was telling me I am getting older not so it was the gels my levels were not high enough to keep my joints and muscles healthy. I switched to shots and my levels went higher and my pain was gone. I was house bound it was so bad.
04-27-2007, 01:12 PM
This is why I think my E2 has gone up. I have had anxiety a lot worse over the last couple of weeks compaired to before, and Dr. did increase my Testim about 6 weeks ago. I am actually hoping my T is down, E2 is up and prolcatin is up, because then I would at least have a reason for feeling the way I do. Thanks for the info.
04-27-2007, 02:00 PM
Six months ago:
Felt tired, depressed, anxiety (not bad), wieght gain, loss of sex drive (actually no sex drive), tired (ready for bed after dinner), Very moody. Lbas listed below. Unsure as to what all needs to be listed. They are 4 pages, so I will just list the stuff I've read about.
Labs Feb: 07
Chloride 99 (98-109)
TSH 3Rd gen 2.088 (.35-5.50)
Total T 400 (241-827)
Glucose 110 (60-125)
No E2 or Prolactin Test at this time.
Placed on Testim 5gms a day.
Sex drive went up, felt good. This was in third and fourth week, then back down hill again.
Labs March 07:
TSH 3rd GEn 1.605 (.35-5.50)
Total T 5.23 (241-827)
Prolactin 15.9 (2.1--17.1)
Testim increased to 5gms one day, 10gms everyother day.
Saw Uro on 3/26/07.
He ordered no more tests. Said Endo would take care of me.
Increased Testim to 10gms everyday. So acutally Testim has been increased twice since last labs, so E2 could difinelty be up by now.
Today: Sex drive down, Anxeity bad, depression bad, tired, still have weight gain.
04-27-2007, 02:22 PM
04-29-2007, 07:56 PM
04-30-2007, 06:49 AM
I go to the DR. next week. I am going to print this log off and take it to the doctor with me. I thought of a few more questions (of course).
I had a vasectomy last year. My wife of course attributes my current problems with this. Any thoughts about that?
Also since I've been fixed would T-CYP shots alone be ok. I know HCG keeps the testies working so you can still have kids, but what are the other benefits. This way I have info to argue with Dr. if she wants to just stick with T-CYP shots.
If she does nothing for E2 (assuming its high, I would imagine it is since I've heard gels can really make E2 go up and my Testim has been increased twice since last labs) can I order Armidex through Dr. Johns RX store or would I still need a scrip to do this? What could I take to lower Prolactin if she does nothing for this?
I had back surgery three months ago due to a compressed nerve in the L4-L5 area. My right leg was numb and I had lost all strength and feeling in it, hence the surgery. I go back for my follow up today (fianlly able to hit the gym this week, so excited about something for a change, only gained 7lbs over 3 months-not bad). Could this compressed nerve have been the cause of any of my Low T? As always thanks for all the info. I really appreciate it. I may give Dr. Johns office a call and see what the wait is to get in just in case things do not go right with Endo. The next thing would be convining wife the need for the trip. Maybe it will all be mute if things go well with Endo but I am not counting on it.
04-30-2007, 09:07 AM
#2 at the moment your first priority is to get good blood test
get everything on my long list, plus ask doctor to add some tests for your pituitary,
you have to concentrate on your prolactin first.
Bromocriptine lowers prolactin but first you must know why it is high.
# 3 after you are able to accomplish above you will also know that you have resonable doctor,
I cannot imagine that he will not give you right medication.
You will have to use the other board if you are forced to use research medicines.
#4 You testicles may have been injuried by vasectomy but clear your problem #1 first.
05-02-2007, 06:59 PM
05-02-2007, 07:00 PM
05-03-2007, 02:13 PM
Actually did not aviod wife at all. We woke up yesterday before the kids and started fooling around, I got something going, then of course had PE just a couple mintues into it, so I took care of wife orally which she appreciated. We had a great anniv, no more sex but lost of closeness, hugging, kissing, ect. She is more understanding than I thought. She actually does not expect me to feel better for a couple more months even if Endo appt goes well.
05-06-2007, 09:21 PM
JanSz, Yeah, I am taking in a list of all blood work from your mention site. I know my prolactin is high at 15.9 but I really think my E2 has gone up since my Testim has been increased twice since last labs, plus I heard the gels can really push your E2 up. We will see what happens. Also how much of the Vitex a day do you take? I heard men should not use it. Do you take it for a while then stop and then take it again?
On a lighter note-sometimes you just have to laugh at the situation. Last night I was kind of thinking if wife started something I may just be able to get it going, but she was tired and fell asleep while we where watching a movie. Tonight I feel she may want to but I am just not feeling right an I do not want to try anything in case of failure. Oh well.
05-07-2007, 11:44 AM
On the bottle says:
take 1 capsule two or three times daily for eight to twelve weeks. Thereafter take 1 capsule daily.
I take 2 pills daily. Plan on retesting latter on, I guess there is no other way to know.
I also ordered NowFoods Vitex.
They have additionally
Dong Quai (Angelica sinensis) (Root) 150 mg*
NOW Foods - Vitex 300 mg - 90 Vcaps
05-07-2007, 09:05 PM
Hang in there buddy, you'll be fine one you start getting treated.
05-09-2007, 05:51 AM
Well the appt sucked to some it up. The only thing I got out of it was more blood work for E2 and Bio-available T. One of the first things they asked was if I was taking any performance enhancing drugs, this should give you an idea of where this went. Here are some questions I asked and answers I got. I gave up asking questions after a while.
Q: My prolactin in 15.9, only 2 way from being out of range.
A: It is normanl we are not worried bout that.
Q: If E2 is high what about Amirdex to bring it down?
A: No, this is what bodybuilders using perfromance enhancing drugs take.
Q: What about my Acne should I switch to Androgel (Dr. Joh recommend I may be having a reaction to Testim and to try to switch to Androgel.
A: No, acne is a side effect of T replacement and you may be to high.(hell I am not even in the mid 500's yet).
Q: What about weekly T-cyp injections with HCG?
A:We do not use HCG except on women who want to get pregnant. We do not do injections and if we do we only do them very two weeks.
Q: My anxiety is bad could this be because of E2/T ratio?
A: Never heard that before. Anxiety could be coming from something else.
It actually sound like they thought my T was to high and it also seemed to me if my E2 was high then they were going to cut back on my Testim. I asked about supplemnets and they bascially said to stay away from all supplements because they could mess up you natural balance. They also felt this had nothing to do with my vasectomy. They did not look at my MRI either. They also said they like to keep T levels between 400 and 500.**** this is where I was at when all this started. I see the Uro on Friday. He is the one who said my T may need to be higher. From there who knows where I will go. I am going to call my insurance and see if I went to Dr. Shippin or Dr. John how much they would re-pay or what they would cover. Then I will have to start talking wife into a trip. Since I already had some blood work done I may try to take Vitex to get prolactin down and see how I feel.
05-09-2007, 11:58 AM
If the doctor that you just been to would give you all the scripts you want, keep him and do not ask him to many questions so you do not embarrass him.
He may get mad at you and stop writing scripts.
You are not there to change medical system, you just want to survive.
If you situation allows you to see Dr John or Dr Shippen that is the best. If not hit he internet, educate your self, treat your self, try different stuff, experiment with your self see how you respond, go from there.
05-09-2007, 12:49 PM
I am kind of at that point. I might atcually be OK where my T level is at, so if I can get my E2 down and I am going to start taking Vitex to get prolactin down then maybe I will feel a little better. I also read Vitex can help with acne. So we will see how that goes. I will see Uro on Friday. I am going to have hime give me a scrip for Cialis. I figure I'll take this every fourth day so if some something happens with wife it will be more effective. Still does not help the libido issue thought but maybe that will get better once I get my prolactin down.
05-09-2007, 07:45 PM
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