Hypogonadism Info

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    Hypogonadism Info


    Hello,

    New here to the boards. Sorry this is long and I am running behind at work so her it goes. I am a 37yrs old, been married 9yrs and have three little ones. Most of last year I was feeling suggish, tired and I would not say depressed but no "zest" or pep in my step. I started having ED problems last October. I had never had problems before, and this time it hit me right in the middle of sex one night. I was making love to wife and bam it was gone. I have been having problems ever since. I went to the Doc in Nov. he tested my T and said I was 411 which was normal. I started doing some research and found that although I was in the normal range for someone my age I needed to be in the 800's. I went back to doc because I was starting to have anxiety attacks and ED got really bad, plus I had no sex drive. He put me on Testim, after six weeks he tested me again and I was at 400. By now I had lots of researsh and told him to test my Estrodial and my prolactin. The E2 was OK at 23 but my prolactin was 15.9. Now I have an Endo appointment in three more weeks. I called and they said they treat Hypogonadism, plus I saw their urologist last month and he said he thought I had Hypogonadism, so hopefully I am going to the right place. My sex drive is still really low, still having anxiety attacks, still having ED problems though wondering if some of it is performance anxiety. Last year a Victorias Secret Catalog would get me aroused, now I could care less to see one. I called the Endo's office yesterday and asked if I could fax my last labs and ask for some more labs and they encouraged it. I faxed them yesterday telling how I felt and asked to get labs done before my visit. I asked them to test T, E2, prolactin, FSH, LH, TSH,GH, and SHGB. Any thoughts on any of this? If this Endo does not work out and I make an appt to see Dr. John, would I be able to fill prescriptions through pharmacy and insurance. I could afford the trip to see him, but the meds could get exspensive if not through insurance. Thanks.

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    Quote Originally Posted by SufferingEd View Post
    Hello,

    New here to the boards. Sorry this is long and I am running behind at work so her it goes. I am a 37yrs old, been married 9yrs and have three little ones. Most of last year I was feeling suggish, tired and I would not say depressed but no "zest" or pep in my step. I started having ED problems last October. I had never had problems before, and this time it hit me right in the middle of sex one night. I was making love to wife and bam it was gone. I have been having problems ever since. I went to the Doc in Nov. he tested my T and said I was 411 which was normal. I started doing some research and found that although I was in the normal range for someone my age I needed to be in the 800's. I went back to doc because I was starting to have anxiety attacks and ED got really bad, plus I had no sex drive. He put me on Testim, after six weeks he tested me again and I was at 400. By now I had lots of researsh and told him to test my Estrodial and my prolactin. The E2 was OK at 23 but my prolactin was 15.9. Now I have an Endo appointment in three more weeks. I called and they said they treat Hypogonadism, plus I saw their urologist last month and he said he thought I had Hypogonadism, so hopefully I am going to the right place. My sex drive is still really low, still having anxiety attacks, still having ED problems though wondering if some of it is performance anxiety. Last year a Victorias Secret Catalog would get me aroused, now I could care less to see one. I called the Endo's office yesterday and asked if I could fax my last labs and ask for some more labs and they encouraged it. I faxed them yesterday telling how I felt and asked to get labs done before my visit. I asked them to test T, E2, prolactin, FSH, LH, TSH,GH, and SHGB. Any thoughts on any of this? If this Endo does not work out and I make an appt to see Dr. John, would I be able to fill prescriptions through pharmacy and insurance. I could afford the trip to see him, but the meds could get exspensive if not through insurance. Thanks.
    If you can add Albumin
    Most likely all you need is to figure out why your prolactin is high and get it int low range, much lower than what they post on test.
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    Prolactin
    This test is used to assess inappropriate lactation and is also useful in the detection of prolactin-secreting pituitary tumors. Elevated prolactin is associated with anovulation and amenorrhea. Prolactin can also be elevated in hypothyroidism when TSH is high. Some studies indicate that elevated prolactin may promote breast and prostate cancer growth.

    Reference Ranges:
    Men: 2.117.7 ng/mL
    LEs Optimal Range: 2.15 ng/mL

    Other than proper E2 (15-17)best
    ratio of good/bad estrones is importand (DIM+I3C+TMG)

    Always good to check thyroid
    Freet3
    FreeT4
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    Welcome to this board, Ed. I see you found it as well (m)


    Seems we are in similar situations here and are both spending an inordinate amount of time researching, of all things, our testicles. I keep wondering where the punchline is....

    I've got nothing new. Seeing the supposed specialist in another week and a half. If that doesn't pan out I'll be seeing either Dr. John here if he's available or someone equally prominent. I am curious to see what a supposed research Dr at a major teaching hospital (Mass General) has to say. Will I get yet another run around, or will I get somewhere? I set this appt up quite some time ago-long before I heard of this bord and Dr. John. Seems the guy has a helluva reputation around here. No more messing around with local bozos who don't know a damned thing and worse yet don't want to.

    Best of luck at your forthcoming appt. Keep us posted.
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    Thanks. I figured my prolactin was high. Jansz your the first one to tell me where I needed my prolactin to be. I just figured if I got it down to 10 I'd be doing better . I did not realize I needed to get it down to 5. Thanks again. I do think if I get that down I will feel much better, but I also think I need to get my T up a bit. First I need to find out what is going on. Thanks again.
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    Hey anyman, I've been reading your stuff on the other boards as well. Your right, I am on the internet everyday at work and at home researching this stuff. I know I do not feel right, my sex drive is out of wack and I want to get back to normal. Like you I am going to a research/teaching hospital (KU). Unfortunately my appt is not until May 8th. I am hoping for the best, but if I have too I will fly out to see Dr. John. I have been reading a lot of his stuff. I seem to find something new everyday. Good luck to you anyman. I am sure we will be seeing a lot of each other on both these boards.
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    A suggestion on research, if I might-


    You say you research at work. Be careful as many, if not most, employers actively monitor employees' computer usage. I do ALL my personal research like this from home--and then I delete the temp files, etc.

    My appt is on 4/24. I really wonder if there will be as big a disconnect between "traditional" medicine and the trendsetters like Dr. John & Dr Shippen as there is between what I read here and my local idiots. If I didn't already have this appt I'd be flying out to Michigan tomorrow!


    I havn't found anything more helpful than what's I've put here and on the other board, but if I do I'll let you know. Damn- this whole process is like having a 2nd job, only the pay is much worse! Weord, though. 20 yrs ago nobofy heard of these issues and now it's a major thing. What are we doing to ourselves and our environment??
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    I use to be careful at work then I saw some of the stuff other people were looking at. Plus I just tell them it is medical. I agree this is really aggrevating. It is such a long process, I am going on 6 months now. I have all kinds of stuff printed off from these baords to take to the doctor with me. I also printed off Dr. Crislers article on TRT treatment to take in with me. I am hoping for the best. I am trying all possible efforts with insurance first. Good luck at your appt. Let us know how it went.
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    Quote Originally Posted by SufferingEd View Post
    Hey anyman, I've been reading your stuff on the other boards as well. Your right, I am on the internet everyday at work and at home researching this stuff. I know I do not feel right, my sex drive is out of wack and I want to get back to normal. Like you I am going to a research/teaching hospital (KU). Unfortunately my appt is not until May 8th. I am hoping for the best, but if I have too I will fly out to see Dr. John. I have been reading a lot of his stuff. I seem to find something new everyday. Good luck to you anyman. I am sure we will be seeing a lot of each other on both these boards.
    I have been screwed by the best.
    Director of sexual health Department at hospital in Manhattan NY.
    ----------------------------------------------------------
    Do not want to post link to his personal web site.
    But you can read there:

    Associate, Professor Urology
    Director, Sexual Medicine Program
    Director, Sexual Medicine Research Laboratory
    -----------------------------------------------------------
    the only thing that makes me happy (not realy),
    when his time come to have ED,
    he knows that nothing can help him,
    he is going to stay with his ED forever.
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    I will be prepaired for worst but hoping for best. I do have a follow up with the Urololgist two days after my Endo visit. He is the one who said I may have Secondary Hypogonadism with out me mentioning anything. He also said I may be someone who needs a higher level of Testosterone. So if Endo does not work, hopefully this guy will work with me. I could have him contact Dr. John for a consult, but If I am going to pay $300 I would just rather meet Dr. John in person. From what I've been reading I could meet Dr. John and then get my prescription filled at my pharmacy though insurance, so that will be my back up plan. I just wish my endo appt was sooner than May 8th.
  

  
 

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