Help with Labs - Chronic Fatigue

[hugh jass]

My background is I'm a 38 y/o male, severe fatigue, never wake up feeling refreshed - EVER, overweight, dieting never works, I have to kill myself at the gym to lose weight (slowly) then it comes back twice as fast, I wreak of ammonia if my workout is anything above mild, I really think I'm Pre-Alzheimer because of my bad memory, my brain just doesn't process information sometimes, sometimes its difficult to make a sentence come out because of the brain fog, low b-12 and never really goes up even with shots, almost non-existent Vitamin D (25), mildly elevated elevated liver enzymes, sprain muscles easily, loose joints, aches and pains everywhere, a lot of grey hair for my age, Low testosterone, libido is hit or miss, mood swings, Hyperhydrosis, muscle wasting (Its hard to gain and hold onto lean mass) Vitamin D deficient my whole life despite working outdoors as a landscaper in South Florida most of my life, I've tried almost every diet/lifestyle/supplement and nothing makes me feel better, if it does make me feel anything at all its always worse. I function daily because of caffeine which I try to limit because I don't want to trash my adrenals, I don't take any medication (except a lot of advil) because its pointless. I'm sure there's more that I have forgot. Oh, Ive tested negative for lyme multiple times, Ive tried the Marshall Protocol and MMS and never got any kind of die off reaction so I dont think its a chronic infection. Here's some blood work I need help deciphering, maybe there's a red flag in here my doc is not seeing.:

Free Progesterone: 2.1 (1.9 - 4.2)
B12 538 (211-946)
Folate 14.2 (>3.0)
Pregenolone46 (<151)
Dihydrotestosterone 29 (30-85) LOW
Molybdenum <2.0 (<3.0)
Dhea-Sulfate 206 (88-427)
Estradiol 18 (7.6-42.6)
B6 18.9 (5.3-46)
Cyclic Amp 19.7 (12.0-22)
Glutathione 254 (225-386)
Calcitrol 66 (10-75)
VIT D 25-Hydroxy 15 (30-100) LOW
CO Q-10 1.44 (0.37-2.20)
Free Testosterone 11.5 (8.7-25.1)
Creatine Kinaese 104 (24-204)
Magnesium 2.2 (1.6-2.6)
Ceruplasmin 22 (15-30)
Copper 87 (72-166)
Zinc 132 (56-134)
Estrogen Total164 (40-115) HIGH
C-Reactive Protein 3.4 (0.0-4.9)
Ammonia 81 (27-102)
Manganese - NON DETECTED
Selenium 213 (79-326)

Just found out these:

HOMOZYGOUS
BHMT-02
BHMT-08

HETEROZYGOUS
VDR Bsm
VDR Taq
ACATI-02
MTHFR 1298C
MTRR A66G
MTRR A664A
CBS 699T
CBSA360A

Any feedback would be appreciated. Thank you.

 

[kenpoengineer]

Will throw this out there: you are a landscaper, are you exposing yourself to a lot of insecticides and herbicides? Heavy metals in some of these? Do you practice shooting guns in indoor range? The reason I ask is that a friend had similar complaints. Went to doctor and just by chance he mentioned he's an avid pistol shooter. Doctor picked up on this and tested him for heavy metals. Found out he had lead poisoning from breathing in lead fumes from the pistol shooting in an indoor range that had faulty vent system.

 

[hugh jass]

Hey man, thanks for the reply. When I was landscaping (got out in 2010) I mostly rode a mower. I did deal with roundup sometimes but not too often, though I did have some skin exposure to it. I love to shoot, just cant afford to do it as often as I'd like. As far as heavy metals, I did have mercury fillings but had them removed by a bio-dentist about 15 years ago. Later that same day I had a mini-stroke while fishing out in the Everglades. That was pretty scary. I lost some function on the left side but got it all back. Ive had a few TIA's since then too, also just as scary. I had heavy metal blood labs done they always come up negative but I hear they arent accurate.

 

[FireRescue]

I would look into why you cannot properly metabolize Vit D (I assume you have been supplementing with it).

I also feel your CRP is quite high (assuming it is mg/L) which is a sign of inflammation/atherosclerosis. That is something I would look at addressing sooner than later.

 

[The Matrix]

i would suspect lyme right off the bat. if you have been using conventional testing then you are wasting your time. The secret to finding lyme is not looking at it directly, but rather indirectly. I have been fortunate to have clinical experience working with some of the best LLMDs in the business and learning their trade secrets. First of all you do not have enough markers to tell help identify lyme, bart or babs. These bastards hide and many times when working on cases with LLMDS I tend to pick up hidden foot prints which are identifying the greater potential it is there. Some time with LLMDS patients there needs to be multiple testing done from other labs such as igenix, galaxy, stoney brooke, MDL in order to find it. Some time I come around the back end suggest doctors order brain spect to identify the potential damage of hyperperfussions in the front lobe. One would be amazed of just how much doctors think they know, but really don't know. This is the wonderful part about working in the field and helping to educate medical professionals so they can learn to look at cases differently to give the best care for their patient. In regards to methylation, i am one of the one who is assisting Dr Lynch when I can to help contribute to this ever expanding field. My area of expertise is knowing biochemical and neurological pathways which are being mapped out to great detail by Dr Lynch who I would consider one of the well respected name in the field of methylation and biochemical pathways. Every week there are new discoveries we are finding from research which just stopped and never moved forward. This is the cutting edge of medicine where using nutrition to heal the body in ways never imagined. Personally you need a lot more data other testing to know what the hell is truly going on other wise just like the other cases of disability I am working on with doctors to help give provide evidence and support for the doctor to make an actual diagnosis other then CFS, and FM. These are 2 diagnosis which just idiopathic and are just labels.

 

[hugh jass]

i would suspect lyme right off the bat. if you have been using conventional testing then you are wasting your time. The secret to finding lyme is not looking at it directly, but rather indirectly. I have been fortunate to have clinical experience working with some of the best LLMDs in the business and learning their trade secrets. First of all you do not have enough markers to tell help identify lyme, bart or babs. These bastards hide and many times when working on cases with LLMDS I tend to pick up hidden foot prints which are identifying the greater potential it is there. Some time with LLMDS patients there needs to be multiple testing done from other labs such as igenix, galaxy, stoney brooke, MDL in order to find it. Some time I come around the back end suggest doctors order brain spect to identify the potential damage of hyperperfussions in the front lobe. One would be amazed of just how much doctors think they know, but really don't know. This is the wonderful part about working in the field and helping to educate medical professionals so they can learn to look at cases differently to give the best care for their patient. In regards to methylation, i am one of the one who is assisting Dr Lynch when I can to help contribute to this ever expanding field. My area of expertise is knowing biochemical and neurological pathways which are being mapped out to great detail by Dr Lynch who I would consider one of the well respected name in the field of methylation and biochemical pathways. Every week there are new discoveries we are finding from research which just stopped and never moved forward. This is the cutting edge of medicine where using nutrition to heal the body in ways never imagined. Personally you need a lot more data other testing to know what the hell is truly going on other wise just like the other cases of disability I am working on with doctors to help give provide evidence and support for the doctor to make an actual diagnosis other then CFS, and FM. These are 2 diagnosis which just idiopathic and are just labels.

Hey Matrix, thanks for taking the time to reply. Damn, I keep coming back to Lyme. I keep ruling it out though because I just get no reaction from heavy doses of things that should be killing it. MMS, Marshall Protocol, herbs, even Rife did nothing. I live in south Fla so Deer ticks dont exist here. Though when I was a kid (13 maybe?) I did have one tick bite and I think it was a dog tick. I found it on the back of my sack and it was engorged so it had been there a while. Gross, I know. I must have gotten it camping in the boy scouts. Man this is confusing.

Thats awesome you work with Lynch. I think hes going to emerge as the top Doc in that field. Hes knows his stuff and Yasko really screwed up with the CBS mutation info. Thousands are treating that the wrong way because of her and Lynch agrees as per our Facebook discussion the other day.

So where should I start (again)? Try and work with these SNP's? I did get some unrine sulfate test strips and my urine sulfate is sky high, over 1600 when it should be under 400. Any thoughts on that?

Going back to Lyme, I did have some tests done at LabCorps. Every Lyme and Co-infection test they have, actually.

HKN1
% CD8-CD57 6.6 (2.0-17)
Abs. CD8-CD57 158 (60-360)

Western Blot
All absent except IgG 41

Bartonella Antibody Panel
Negative

Babesia Microti
Negative

Ehrlichia Detection
Negative

Mycoplasma M Pneumoniae
Negative

Should I still get tested elsewhere?

 

[hugh jass]

Heres some recent bloodwork if any wants to take a look. Feel free to chime in.

Amino Acid Profile, Qn, Plasma - Urine
Taurine 82.0 umol/L 29.2 - 132.3

Aspartate 3.0 umol/L 0.9 - 7.4

Hydroxyproline 13.4 umol/L 4.7 - 35.2

Threonine 73.5 umol/L 67.8 - 211.6

Serine 73.1 umol/L 48.7 - 145.2

Asparagine 38.9 umol/L 29.5 - 84.5

Glutamate 90.1 umol/L 18.1 - 155.9

Glutamine 363.2 umol/L 332.0 - 754.0

Sarcosine 1.5 umol/L 0.0 - 4.0

Alpha-aminoadipate 1.2 umol/L 0.0 - 2.2

Proline 162.8 umol/L 84.8 - 352.5

Glycine 210.0 umol/L 132.0 - 467.0

Alanine 434.0 umol/L 124.8 - 564.2

Citrulline 23.6 umol/L 13.7 - 63.2

Alpha-aminobutyrate 12.1 umol/L 5.4 - 34.5

Valine 254.8 umol/L 102.6 - 345.4

Cystine 15.9 umol/L 13.5 - 60.2

Methionine 21.6 umol/L 12.7 - 41.1

Homocitrulline <0.5 umol/L 0.0 - 1.7

Cystathionine 0.1 umol/L 0.0 - 0.7

Alloisoleucine 2.7 umol/L 0.4 - 3.2

Isoleucine 64.7 umol/L 27.7 - 112.8

Leucine 123.1 umol/L 54.9 - 205.0

Tyrosine 50.2 umol/L 31.1 - 118.1

Phenylalanine 51.7 umol/L 33.6 - 101.9

Argininosuccinate <0.1 umol/L 0.0 - 3.0

Beta-alanine 2.4 umol/L 1.1 - 9.0

Beta-aminoisobutyrate 0.7 umol/L 0.3 - 4.3

Homocystine <0.1 umol/L 0.0 - 0.1

Gamma-aminobutyrate <0.4 umol/L 0.0 - 0.3

Tryptophan 66.7 umol/L 23.5 - 93.0

Hydroxylysine 0.1 umol/L 0.1 - 0.8

Ornithine 68.5 umol/L 30.5 - 131.4

Lysine 180.9 umol/L 94.0 - 278.0

Histidine 69.4 umol/L 47.2 - 98.5

Arginine 42.6 umol/L 32.0 - 150.0

Comp. Metabolic Panel
Glucose, Serum 84 mg/dL 65 - 99

BUN 11 mg/dL 6 - 20

Creatinine, Serum 0.94 mg/dL 0.76 - 1.27

eGFR If NonAfricn Am 102 mL/min/1.73 >59

eGFR If Africn Am 118 mL/min/1.73 >59

BUN/Creatinine Ratio 12 8 - 19

Sodium, Serum 139 mmol/L 134 - 144

Potassium, Serum 4.7 mmol/L 3.5 - 5.2

Chloride, Serum 98 mmol/L 97 - 108

Carbon Dioxide, Total 24 mmol/L 18 - 29

Calcium, Serum 10.1 mg/dL 8.7 - 10.2

Protein, Total, Serum 7.4 g/dL 6.0 - 8.5

Albumin, Serum 4.9 g/dL 3.5 - 5.5

Globulin, Total 2.5 g/dL 1.5 - 4.5

A/G Ratio 2.0 1.1 - 2.5

Bilirubin, Total 0.5 mg/dL 0.0 - 1.2

Alkaline Phosphatase, S 60 IU/L 39 - 117

AST (SGOT) 35 IU/L 0 - 40

ALT (SGPT) 60 IU/L 0 - 44 - High

Testosterone,Free+Weakly Bound
Testosterone, Serum 430 ng/dL 348 - 1197 03

Testost., % Free+Weakly Bound 30.2 % 9.0 - 46.0

Testost., F+W Bound 129.9 ng/dL 40.0 - 250.0

Folate, RBC and Serum
Folate, Hemolysate 455.0 ng/mL

Hematocrit 45.0 % 37.5 - 51.0

Folate, RBC 1011 ng/mL 499 - 1504

Folate (Folic Acid), Serum 14.0 ng/mL >3.0

Manganese, Plasma and RBC
Manganese, Plasma 1.1 ng/ml <2.0 04

Manganese, RBC 17.7 ng/ml 11.0 - 23.0

Carnitine, Total and Free
Carnitine, Total 51 umol/L 25 - 69

Carnitine, Free 40 umol/L 16 - 60

Esterified/Free 0.3 Ratio 0.1 - 0.9

Vitamin B3 (Niacin+Metabolite)
Nicotinamide 53.0 ng/mL 5.2 - 72.1

Nicotinic Acid <5.0 ng/mL 0.0 - 5.0

DHEA-Sulfate, Serum
DHEA-Sulfate, LCMS 259 ug/dL
Reference Range:
Adult Males (31 - 40y): 33 - 416

Molybdenum,
Serum <2.0 ng/ml <3.0

Estradiol
7.2 pg/mL 7.6 - 42.6 - Low

Vitamin B6, Plasma
Vitamin B6 18.0 ug/L 5.3 - 46.7

Total Glutathione
293 ug/mL 225 - 386

Vitamin B5
79.9 ng/mL 12.9 - 253.1

Vitamin B7
0.14 ng/mL 0.05 - 0.83

Calcitriol(1,25 di-OH Vit D)
92.0 pg/mL 10.0 - 75.0 - High

Histamine Determination, Blood
48 ng/mL 12 - 127 01

Vitamin D, 25-Hydroxy
16.4 ng/mL 30.0 - 100.0 - Low

Vitamin B1 (Thiamine), Blood
Vit. B1, Whole Blood 148.0 nmol/L 66.5 - 200.0

Vitamin B2, Whole Blood
210 ug/L 137 - 370

Histamine, Plasma
0.24 ng/mL <1.00

Homocyst(e)ine, Plasma
9.6 umol/L 0.0 - 15.0 03

Sedimentation Rate-Westergren
2 mm/hr 0 - 15

Vitamin B12
592 pg/mL 211 - 946

Magnesium, Serum
2.2 mg/dL 1.6 - 2.6

Zinc, Plasma or Serum
105 ug/dL 56 - 134

Ferritin, Serum
113 ng/mL 30 - 400

Ammonia, Plasma
57 ug/dL 27 - 102

Magnesium, RBC
5.4 mg/dL 4.2 - 6.8

Selenium, Serum/Plasma
264 ug/L 79 - 326 01

 

[speeddr2000]

I had really bag fatigue and brain fog. My T levels where 313 once i got in to the 700 plus i got rid of both. Your levels are at 430 maybe that.

 

[hugh jass]

Thanks for the reply! Definitely working on that.

 

[kenpoengineer]

For the vitamin D deficiency, supplement with OTC Vitamin D3. It's important to use D3 600 IU or above.

 

[FireRescue]

Some quick comments from what I see.

Your free T is good so even though your Total T is on the low end it should not be tanking you too bad.

Your E2 is too low.

 

[sammpedd88]

My vitamin D3 isn't as low as yours and my Dr has me taking 5000 iu's a day. You may want to start high since you are so low.

 

[The Matrix]

First of all no offense, but people do not truly understand how vitamin d recommendations change when there is a pathogen on the VDRreceptor. You do not supplement vitamin d when the vitamin 1,25 d is this high in relationship to the the 25 oh. It will only cause increase inflammation in the person. I would not recommend any further vitamin D supplementation till you get a foot hold on the vitamin d 1,25. The lab corp western blots are garbage. The gold standards I use for doctors or igenix for lyme and galaxy for bartonella as they just have came out with a new test. Your body appears to be in a highly inflammatory state due to the altered glutamine/glutamate ratio which elevated. B6 would be good to add since your cystiothione is little on the low side. I would suggest the inflammation is causing an alteration with the methylation cycle. I would suggest a neuroscience 9028 to check adrenals and neurotransmitters to see if the lyme may be active due to upregulation When you get the results, you may want to pm me. fr Dr Fein the LLMD, I have been working with is a good associate of Trevor who came up the Marshall protocol. One can not get closer to the horses mouth. In the future, either in Austraila, USa or Uk we hoping to plan or having a huge conference with Trevor, Dr Fein, myself, and Ben lynch, and a few other specialist in the field to help educate the population. I am sorry I have not been around, but I am getting smack from very direction. I have been asked by a group of doctors to help them in restructure the medical model for Austrailia by using the Bio-individualized Medicine based model I co founded. Like I said its freaken crazy. Just remember no matter how much people beat you down. one will only bounce back stronger. I am achieving the goal I set out to do over several years ago. To change how the world view medicine....

 

[kenpoengineer]

My sister has been diagnosed with Lyme disease about a year ago. She is having issues proving she has it due to not meeting the CDC's 5 blood markers definition. What doctors do you recommend looking up here in the US? Thanks.

 

[The Matrix]

Depending upon her location I have a few LLMD which I would consider the best in the field. One in seattle, Cali, Nj, 2 in NC, and DC. I have all working relationships with them. Some times they will send me a patient to work on for a few months before administering antibiotics to try to stabilize them and get their immune system, neurology, endocrine, detoxification, and other issues under control. Many time by doing the ground work you will be able to correct a lot of the issues and anitbiotics may not even be needed. This is the advantages of using an integrative approach with these cases.

 

[kenpoengineer]

She lives in northern Ohio. Can you please PM me the names of those doctors close by? Thank you very much.

 

[AnabolBurger]

It is far more likely that your low Testosterone levels are the cause of your fatigue. I would look into testing your LH and FSH and consider Clomid before I would go the "Lyme Disease" route.

Which brings me to my next comments:

I would be wary of the Lyme doctor world.
I went into that world head-first and found a bunch of scam artists charging $1500 for bloodwork, etc.
Naturally, none of them take insurance. So you must pay cash.

They call every symptom Lyme.
And if its not Lyme, they call it one of the "co-infections".
What's that? You test negative on Lyme tests?
Well they have an answer for that too: "standard tests are inaccurate".
"Go to our labs instead of the ones the entire world goes to".
Your vitamin D is low? That isn't because of lack of sunshine or dietary Vitamin D intake.
It isn't because you're caucasian with pale skin and naturally have low vitamin D (therefore need sunlight)

Its because the little Lyme bacterias are in the Vitamin D receptors blocking it!!!!

Everything is Lyme lyme lyme.
Instead of paying $10 for all the bloodwork, you dish out $1500 for bloodwork, and home remedies and products they will sell you.

Look at the credentials and medical training of the "LLMD" you hear about.
Do they even have a medical degree?
The Lyme doctor I spoke to had published nearly 20 books on the topic.
Claims he is the most well known in the field. He's in florida as well.
Turns out he's not even an MD.
In fact he had a degree in child psychology and did stand up comedy on the side.
His initial office visit was $2500. Cash only.

I can't make this stuff up.

Then not surprisingly, all your bloodwork comes back glaringly positive for Lyme Disease. Of course.
And suddenly you're positive not only for Lyme but everything else they can treat you for.
In order to not make it too obvious, they wont say you have everything.
The typical claim is always "Lyme plus 1 or 2 coinfections."

There are people taking out 2nd mortgages on their homes just to pay for office visits and tests.

Then they begin shoving tons and tons of drugs into your system, for months and months.
Potent, dangerous, gut-damaging antibiotics. In dangerously high doses for extended periods of time.
Doses that cause severe side effects even in perfectly healthy people.
And instead of calling it that, they tell you that you're "HERXING" (killing off the bacteria) and to keep shoveling those poisons into you.
You will hear talk of more conspiracies, how the medical world doesn't know that Lyme "encapsulates" itself into a hard shell, and protects itself from the antibiotics.
Therefore you must take it for each life cycle of the bacteria, and wait for it to come out of its shell again.
You may even hear about "biofilms" where entire colonies of lyme hide behind a "net" of cell walls they've built in your bloodstream, protecting them from the antibiotics.
So shove more and more antibiotics in. Feel like crap? You're just killing the lyme! (and yourself)

All the while testing negative on all standard Lyme diagnostics.

I too was on the phone for hours with a well known Lyme doctor in Florida, who swore up and down i had lyme.
How did he know that? He didn't even run any bloodwork. But YES it was lyme and YES it was probably bartonella.
His questions were funny.
Him: "Do you have depression too?"
Me: "Yes"
Him: "Thats Bartonella!"
Me: "Really?"
Him: "Do you sometimes fly off the handle and have a temper?"
Me: "Yes! How did you know?"
Him: "That's DEFINITELY Babesia!"
Me: "Wow!"

Just know there are a ton of scam artists in the LLMD world.
You'll find more legit clinics up in the Lyme populous areas, but even there, the horror stories abound.
You're told to believe you have something that no test can detect.
You're told to believe there's a conspiracy in the medical world to hide the truth about Lyme.
There are tinfoil hat wearing people on all the forums, seeded there, giving out doctors names. People who work for these doctors.
I've seen it firsthand.

The gold standard is western blot test, which you can get from Labcorp or Quest.
Yes I am aware of the conspiracy theory that Labcorp omitted the "important bands" from its test therefore Labcorps test is "useless".
I've yet to see an ounce of proof of this anywhere.

If you want an accurate response on whether you have Lyme - don't go to an LLMD.
Ask your doctor to write a blood order for a C6 Peptide test. This is offered through Quest Diagnostics.
If that is negative, no matter what your doctor is claiming, you do not have Lyme.
Period.
Its far more sensitive than the antibody test, and more accurate than just relying on Western Blot alone.

There is some relief thinking you have Lyme. I know. I've been there. At least its "something".
But I want to strongly caution you about the medications involved.
Especially if you're testing negative on all standard tests.
You should not have to pay $1500 to a doctor and get involved in this world of conspiracies just to find out if you have Lyme.

It is far far far far far more likely your hormone levels are the reason for your fatigue.
Just like someone said earlier. When he corrected his Testosterone and Estrogen levels, the fatigue dissipated instantly.
I thought I had lyme for nearly 2.5 years.
Turns out I had Secondary Hypogonadism.
Fatigue, Brain Fog, Severe Depression, anxiety, terrible sleep quality, unable to work out, etc.

After 2.5 years of misery, I went on Clomid and within 24 hours it literally reversed. 100%.
Good luck.

 

[Thunder13]

WOW GREAT EFFFING POST! This Dr in Florida ....did his name(s) begin with a K By any chance? Also did an Endo do your bloodwork and RX you the Cloimd. Glad you are doing better, its great to hear a success story .

It is far more likely that your low Testosterone levels are the cause of your fatigue. I would look into testing your LH and FSH and consider Clomid before I would go the "Lyme Disease" route.

Which brings me to my next comments:

I would be wary of the Lyme doctor world.
I went into that world head-first and found a bunch of scam artists charging $1500 for bloodwork, etc.
Naturally, none of them take insurance. So you must pay cash.

They call every symptom Lyme.
And if its not Lyme, they call it one of the "co-infections".
What's that? You test negative on Lyme tests?
Well they have an answer for that too: "standard tests are inaccurate".
"Go to our labs instead of the ones the entire world goes to".
Your vitamin D is low? That isn't because of lack of sunshine or dietary Vitamin D intake.
It isn't because you're caucasian with pale skin and naturally have low vitamin D (therefore need sunlight)

Its because the little Lyme bacterias are in the Vitamin D receptors blocking it!!!!

Everything is Lyme lyme lyme.
Instead of paying $10 for all the bloodwork, you dish out $1500 for bloodwork, and home remedies and products they will sell you.

Look at the credentials and medical training of the "LLMD" you hear about.
Do they even have a medical degree?
The Lyme doctor I spoke to had published nearly 20 books on the topic.
Claims he is the most well known in the field. He's in florida as well.
Turns out he's not even an MD.
In fact he had a degree in child psychology and did stand up comedy on the side.
His initial office visit was $2500. Cash only.

I can't make this stuff up.

Then not surprisingly, all your bloodwork comes back glaringly positive for Lyme Disease. Of course.
And suddenly you're positive not only for Lyme but everything else they can treat you for.
In order to not make it too obvious, they wont say you have everything.
The typical claim is always "Lyme plus 1 or 2 coinfections."

There are people taking out 2nd mortgages on their homes just to pay for office visits and tests.

Then they begin shoving tons and tons of drugs into your system, for months and months.
Potent, dangerous, gut-damaging antibiotics. In dangerously high doses for extended periods of time.
Doses that cause severe side effects even in perfectly healthy people.
And instead of calling it that, they tell you that you're "HERXING" (killing off the bacteria) and to keep shoveling those poisons into you.
You will hear talk of more conspiracies, how the medical world doesn't know that Lyme "encapsulates" itself into a hard shell, and protects itself from the antibiotics.
Therefore you must take it for each life cycle of the bacteria, and wait for it to come out of its shell again.
You may even hear about "biofilms" where entire colonies of lyme hide behind a "net" of cell walls they've built in your bloodstream, protecting them from the antibiotics.
So shove more and more antibiotics in. Feel like crap? You're just killing the lyme! (and yourself)

All the while testing negative on all standard Lyme diagnostics.

I too was on the phone for hours with a well known Lyme doctor in Florida, who swore up and down i had lyme.
How did he know that? He didn't even run any bloodwork. But YES it was lyme and YES it was probably bartonella.
His questions were funny.
Him: "Do you have depression too?"
Me: "Yes"
Him: "Thats Bartonella!"
Me: "Really?"
Him: "Do you sometimes fly off the handle and have a temper?"
Me: "Yes! How did you know?"
Him: "That's DEFINITELY Babesia!"
Me: "Wow!"

Just know there are a ton of scam artists in the LLMD world.
You'll find more legit clinics up in the Lyme populous areas, but even there, the horror stories abound.
You're told to believe you have something that no test can detect.
You're told to believe there's a conspiracy in the medical world to hide the truth about Lyme.
There are tinfoil hat wearing people on all the forums, seeded there, giving out doctors names. People who work for these doctors.
I've seen it firsthand.

The gold standard is western blot test, which you can get from Labcorp or Quest.
Yes I am aware of the conspiracy theory that Labcorp omitted the "important bands" from its test therefore Labcorps test is "useless".
I've yet to see an ounce of proof of this anywhere.

If you want an accurate response on whether you have Lyme - don't go to an LLMD.
Ask your doctor to write a blood order for a C6 Peptide test. This is offered through Quest Diagnostics.
If that is negative, no matter what your doctor is claiming, you do not have Lyme.
Period.
Its far more sensitive than the antibody test, and more accurate than just relying on Western Blot alone.

There is some relief thinking you have Lyme. I know. I've been there. At least its "something".
But I want to strongly caution you about the medications involved.
Especially if you're testing negative on all standard tests.
You should not have to pay $1500 to a doctor and get involved in this world of conspiracies just to find out if you have Lyme.

It is far far far far far more likely your hormone levels are the reason for your fatigue.
Just like someone said earlier. When he corrected his Testosterone and Estrogen levels, the fatigue dissipated instantly.
I thought I had lyme for nearly 2.5 years.
Turns out I had Secondary Hypogonadism.
Fatigue, Brain Fog, Severe Depression, anxiety, terrible sleep quality, unable to work out, etc.

After 2.5 years of misery, I went on Clomid and within 24 hours it literally reversed. 100%.
Good luck.

 

[Blergs]

My sister has been diagnosed with Lyme disease about a year ago. She is having issues proving she has it due to not meeting the CDC's 5 blood markers definition. What doctors do you recommend looking up here in the US? Thanks.

the lyme disease is messsed up. and many docs are ignorant on how tricky it can be to spot. longer you wait the worse it is, id hunt hard for doc to give meds to kill it off. good luck!

OP, have you had thyroid issues in passed? are you sure you dont have lyme disease?