I have fibromyalgi. Anyone else learning to deal with a chronic condition?

  1. I have fibromyalgi. Anyone else learning to deal with a chronic condition?


    Let me open with I used to be on here a lot. Verifiable by the info to the left lol. Used to be in the gym non-stop, used to be a supplement rep. Then life became hectic, I sprained my spinal cord snowboarding, work took over, etc. We all know the story.

    Beginning of this year though suddenly I found myself in and out of the hospital non-stop for 3 months feeling like it was the end. Pounding migraines, complete body weakness, unique pain sensations, vocal cord dysfunction, neuropathy of my hands and feet, and many other issues. I went from seemingly normal and healthy to having to file for FMLA at work to keep my job.

    I had a severe allergic reaction to a prescription of prednisone. I was already having some issues(a choking sensation that would later come to be identified as a vocal cord dysfunction) and some flu like symptoms. But after that reaction I was living in hell. Sitting on the couch unable to move in pain I didn't know existed while at the same time not being able to feel my hands or feet with doctors telling me they don't know how to help.

    Several specialists later and I was provided help by a combination of a neurologist and a rheumatologist. I take Gabapentin nightly now and generally muscle relaxers as well as high dose Vitamin D because apparently I can't keep my levels up with that and it contributes to some serious illnesses and side effects. In fact from personal experimentation I am pretty sure it was the cause of my vocal cord issues as keeping up on it keeps the choking at bay. Diagnosis is fibromyalgia. I am one of the lucky few dudes who end up with it.

    I literally was 30 years old for 1 month before I came down sick at the end of 2016. By the start of 2017 I was not sure if I was going to live, or if I even wanted to live anymore if the issues I had were never going to get better(most of that came from the allergic reaction). I am just now getting back into the gym. I do physical therapy for my neck as I have a clicking sound at the base of my skull and severe neck tension.

    Instead of the good old DOMS I remember I get severe pain for almost a week from gym time. And I am so out of shape from being in this condition I put on 30 lbs in the last 10 months. This is not me, this is not what I am used to. Being out of breath climbing stairs? WTF?

    So now I have to start all over, and it is going to hurt more than it has ever before. I am now extremely prone to muscle tension, tension headaches, and my muscles locking up around my neck, jaw, and head. Most of that I think is stress related and being in management means I get a good deal of that.

    My saving grace is my girlfriend who I was with for only a month before my life went to ****. She has done nothing but support me and sacrifice for me. It is insane, I lucked out right before I ran out of luck lol. My brother also put time into keeping my mind stable when I was getting close to the point where I wasn't sure life was worth it. So I plan to hang around here again. I was looking for a better multi-vitamin to mix in as I think I have low potassium(probably the ONLY thing I haven't had blood work done on lol) due to the charlie horses in my feet lately and this place came to mind.

    My question is has anyone else had their life turned upside down and found a way to deal with it? What kind of support structures did you build? How do you deal with the fear? In the begging I was told it might be MS or Lupus, fibro is a light diagnosis in comparison to those things so I am thankful for that while at the same time afraid that this might be something worse. Some days I have weird headaches and I am not sure if it is a passing tension headache or a damn aneurysm or stroke. I wake up and don't know if I will go to work and be normal or have to down meds and sleep for 4 more hours and drag into work using FMLA time and deal with my bosses looks. I mean Christ I have to turn down sex because I feel like **** half the time. I wen't from a healthy, go anytime all the time guy to "sorry I can't tonight". It makes you feel like less of a man.


  2. I hate to hear this man....i good friend of mine and my wife had it (she passes from cancer 2yrs ago)...she found out stretching and just moving around did better for her....i hope u can find out what works best for u
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  3. What a journey youíre on! I was diagnosed with fibromyalgia and hashimotos (another autoimmune disease that attacks the thyroid) several years ago... I have not been through as much as you but as I do know it was very very hard! I have the neck pain and headaches as well. The medicine they put me on only made things worse. I found in the hardest times, all I could did was pray and trust God could give me the strength to pull through. For the most part, things are much better now. I try to do as much as I can to keep inflammation down as well as staying active. Even if itís small workouts, pace yourself and do your best to keep moving. Itís still hard to trust that when everything hurts but I know it has helped me. Praying for you! Iím glad you have good support! That really means a lot!
    The Lord is the everlasting God, the Creator of the ends of the earth. He will not grow tired or weary, and his understanding no one can fathom. He gives strength to the weary and increases the power of the weak. Isaiah 40:28b-29

  4. My wife has MS she was diagnosed 8 years ago now, they said she has had it for a really long time though. There are good days, and bad. Good days, she loves going for walks, and now that we got her diet right she has lost a good amount of weight, and I just got her a tummy tuck cause thats what she wanted. She was going to the gym, but mainly did machines, now that she is doing a little better and feeling better about herself, she is asking me to show her how to lift, and wants me to put a program together for her. On her bad days, she atleast tries to get a small walk in 30 mins at the least. She says the one thing that helps her the most is staying active. She volunteers at our daughters school and plays with the kids, and does lunch mom duties.
    Hope the best for you, and I hope you find something that makes you feel more like you. Just keep doing it. It does get better. Prayers your way

  5. Quote Originally Posted by Zero V View Post
    Let me open with I used to be on here a lot. Verifiable by the info to the left lol. Used to be in the gym non-stop, used to be a supplement rep. Then life became hectic, I sprained my spinal cord snowboarding, work took over, etc. We all know the story.

    Beginning of this year though suddenly I found myself in and out of the hospital non-stop for 3 months feeling like it was the end. Pounding migraines, complete body weakness, unique pain sensations, vocal cord dysfunction, neuropathy of my hands and feet, and many other issues. I went from seemingly normal and healthy to having to file for FMLA at work to keep my job.

    I had a severe allergic reaction to a prescription of prednisone. I was already having some issues(a choking sensation that would later come to be identified as a vocal cord dysfunction) and some flu like symptoms. But after that reaction I was living in hell. Sitting on the couch unable to move in pain I didn't know existed while at the same time not being able to feel my hands or feet with doctors telling me they don't know how to help.

    Several specialists later and I was provided help by a combination of a neurologist and a rheumatologist. I take Gabapentin nightly now and generally muscle relaxers as well as high dose Vitamin D because apparently I can't keep my levels up with that and it contributes to some serious illnesses and side effects. In fact from personal experimentation I am pretty sure it was the cause of my vocal cord issues as keeping up on it keeps the choking at bay. Diagnosis is fibromyalgia. I am one of the lucky few dudes who end up with it.

    I literally was 30 years old for 1 month before I came down sick at the end of 2016. By the start of 2017 I was not sure if I was going to live, or if I even wanted to live anymore if the issues I had were never going to get better(most of that came from the allergic reaction). I am just now getting back into the gym. I do physical therapy for my neck as I have a clicking sound at the base of my skull and severe neck tension.

    Instead of the good old DOMS I remember I get severe pain for almost a week from gym time. And I am so out of shape from being in this condition I put on 30 lbs in the last 10 months. This is not me, this is not what I am used to. Being out of breath climbing stairs? WTF?

    So now I have to start all over, and it is going to hurt more than it has ever before. I am now extremely prone to muscle tension, tension headaches, and my muscles locking up around my neck, jaw, and head. Most of that I think is stress related and being in management means I get a good deal of that.

    My saving grace is my girlfriend who I was with for only a month before my life went to ****. She has done nothing but support me and sacrifice for me. It is insane, I lucked out right before I ran out of luck lol. My brother also put time into keeping my mind stable when I was getting close to the point where I wasn't sure life was worth it. So I plan to hang around here again. I was looking for a better multi-vitamin to mix in as I think I have low potassium(probably the ONLY thing I haven't had blood work done on lol) due to the charlie horses in my feet lately and this place came to mind.

    My question is has anyone else had their life turned upside down and found a way to deal with it? What kind of support structures did you build? How do you deal with the fear? In the begging I was told it might be MS or Lupus, fibro is a light diagnosis in comparison to those things so I am thankful for that while at the same time afraid that this might be something worse. Some days I have weird headaches and I am not sure if it is a passing tension headache or a damn aneurysm or stroke. I wake up and don't know if I will go to work and be normal or have to down meds and sleep for 4 more hours and drag into work using FMLA time and deal with my bosses looks. I mean Christ I have to turn down sex because I feel like **** half the time. I wen't from a healthy, go anytime all the time guy to "sorry I can't tonight". It makes you feel like less of a man.
    I recently was reading up into some over the counter nootropics: amino acids and read quite a few claims about benifits towards fybromyalgia ..reading your post i thought id do a wuick search as my research wasnt towards this so i didnt bookmark anything. Found a site living smarter with fybromyalgia; amino acids..

    Cbd oil should also help a bit with inflammation at cellular lvl and neuropathic pain control
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